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Glad to read about others’ experiences with mental illness

Posted in Life of the mind, Reading life, tagged , , , , , , , , , , , , , on April 9, 2013 | Leave a Comment »

So I was appreciative this week to receive a book to review called Pros of Prozac: A Faith-Based Memoir of Overcoming the Stigma. Given my experience in book reviewing and my personal interest in mental health issues, this book was a welcome read.

Pros of Prozac

It’s a little slip of a book, just over a hundred pages, which the author says is mostly intentional, so someone interested in the topic can just get a quick overview of her experience. So I read it in one sitting this afternoon. Beca Mark writes about her experience with postpartum depression after the birth of her first child, struggling with mood and depression, and finally deciding to seek professional help and take medication for her depression. It took 15 months to choose to take Prozac, and Mark discovered two things: one, why did she wait so long while suffering so much? and two, she realized that she had actually been struggling with depression her whole life but hadn’t known it until Prozac made her feel really good and really herself.

Mark’s experience is actually what I would call fairly straightforward. She was really struggling, and then struggled with just the concept of taking medication because of the stigma it has in our society (and the real lack of open discussion of the topic in her otherwise close-knit, very large family), and then finally decided to give in and take the medicine. And in fairly short order, she just felt a whole lot better. And she has felt consistently better in the years she’s been taking it, which I’m guessing is probably about five. She makes clear that it hasn’t made her life easy-peasy or super-simple or solved all her problems. It has simply made her more able to think clearly and be motivated and to just be her best self. As I put it, it’s helped her to be able to cope in the way that most “normal” people (i.e. those who don’t have depression or other mental-health struggles) do.

Mark says this is a faith-based memoir, but it’s really not very heavy on the faith angle. I think her beliefs and the culture that surrounds those faith beliefs give a frame to her story, but even those who don’t consider themselves very religious can find a lot of value in her story. All in all, this is really a simple tale, and one that seeks simply to provide some basic information and encouragement to those who may find themselves struggling emotionally but feeling hesitant to accept that there might be a “label” for what they’re experiencing and that medication might help. Our culture at large still places stigma on mental health issues, as well as taking psychiatric medication. And individuals within faith communities may very well sometimes compound that stigma by saying that if a sufferer could just be more self-reliant or more faithful, they wouldn’t suffer.

I heartily support Mark’s goal to contribute to the general discussion and bring this topic “out of the darkness” into the light of day. The more those of us who do struggle with emotional challenges really talk openly about this and show that we’re pretty normal, typical, “good” people, and not weird or weak or something negative, the more others will be better educated, aware, and accepting — and supportive. And, even better, the fewer the number of people who do suffer from mental health issues will feel marginalized or hesitant to seek treatment. Mark really doesn’t want more people to suffer in silence and without treatment. Why should they? It’s pointless to suffer when there is help.

In applying Mark’s story to my experience, I find that mine is a bit more complex. (She does say that mental illnesses are complex in cause, etc.) Because I have bipolar issues, finding medications and treatments to keep me on an even keel can be trickier. Antidepressants help the most, but they tend to “poop out” after a year or two. I’m in that spot right now, I think. I have been on a number of different medications over the years, and it hasn’t been as “simple” (that’s relative, I know) as being able to get on Prozac and stick with it for years. I would like that a lot if it were that comparatively simple.

When it comes to the faith angle, I just wrote that there really isn’t a lot of it in here, so this book is really accessible for everyone. I wouldn’t have minded seeing more, personally. I have written about how my faith informs and is affected by my mental issues, too, and I don’t think Mark really digs into that as much as I have, even.

But bottom line: a good read, particularly for those who are “new” to the idea of having possible emotional struggles, and one that’s simple and straightforward and encouraging. Kudos to Beca Mark for putting her story out there and just being honest. The more of us who do so, the better.

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So glad I could help

Posted in Life of the mind, tagged , , , , , , , , , , , , , , , on April 1, 2013 | Leave a Comment »

Few things give me greater satisfaction than having friends (or even just acquaintances) come to me as a resource when faced with questions relating to mental health. Perhaps in part it’s nice to know that, despite my sometimes quirks or slightly “off” behavior, they still consider me a valuable source of information and even wisdom. It’s nice to be valued, to be needed, to be seen as able to dispense tidbits of guidance. It’s even better to feel that maybe, just maybe, everything I’ve gone through can help someone else, that I can maybe help cut short the long journey for them just a little, provide a quicker route that still gets them to a good destination.

I can tell you about my therapists, my psychiatrists (i.e., medicine-dispensers) and medications, the books I’ve read, the ups and downs and ins and outs. I can talk about the wacky ways my mind is able to play tricks on me, despite my hyper-awareness that it can, and a sort of vigilance about trying to think clearly and navigate life from a kind of emotionally handicapped state. I can share the surreal-ness of dealing with others who have been in worse shape than I have ever been, of their living in (and trying to reason from within) realities that just don’t line up with the reality the rest of us know. I can look back on my own experiences and say, “I wish I could have seen the whole picture from the beginning, because I would have gone right to ___.” Man, does it feel good to think that I might be helping someone jump over hurdles with relative ease and speed that I’ve had to walk around, re-jump, and move around countless times.

Again, in this latest discussion, a friend and I agreed that it would make life so much better for everyone if all of us could just open up about our real challenges. Most of us have something, a weakness or an addiction or a habit or an illness, whatever, that we find embarrassing or shameful somehow, that we would really rather NOT talk about. And there are plenty of stigmas left in our culture about lots of problems, including mental illness. It just doesn’t help that there aren’t really clear-cut answers (let alone even questions) about how our minds and emotions, etc., work. The science is much clearer with other health problems. So it makes mental illness still hazy and misunderstood and even a little scary for people who don’t have to face it head-on regularly. If just more of us SPOKE UP! Whatever your shame, your stigma, your weakness, your difficulty, just talk about it. Yeah, unfortunately, you’re probably still going to be judged and misunderstood by some, maybe many. But you could help so many others.

oven mitt

I feel so weak and so isolated sometimes, and then nervous about talking about my experience. Because like most everyone, I just want to be liked, to be understood, to be respected and appreciated. And that stigma can put a big roadblock in the way of that satisfying goal. But I want to help other people. I want to pave the way for less stigma, for more understanding, even for better science (somehow). So, I talk. I write. I blog. I’m open. It can be nerve-wracking and painful. But I’m doing it anyway. Because I’m glad I can help. So call me or write if you have questions or need advice for a family member or friend. Reach out. Sometimes you might need oven mitts, but pretty much I’ll always be happy to talk, if I can help someone else.

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Don’t use my mental illness as an excuse to write off everything I say or do

Posted in Life of the mind, tagged , , , , , , , , , on March 26, 2013 | 3 Comments »

I’ve been thinking about this idea for a long, long, LONG while, and I’ve put it in words now after reading some others’ blogs. Here it is: My mental illness is NOT an excuse for people with whom I interact to just write off anything I say or do that they disagree with. And yes, this extends to opinions that I have that are carefully considered, based on life experiences and, yes, even my interactions with YOU, who are so eager to chalk up my opinions to craziness.

I’m not going to say that in my darkest moments (and the times I feel most ashamed of myself and my behavior) I never say something I regret or that I don’t even completely, 100%, mean. I do. But, honestly, DON’T WE ALL? We all get tired, angry, frustrated, annoyed, irritated, strung out and worn out, and say and do things we don’t mean or that we just regret. So in this way, I’m really no different than any “normal” person, if you’d like to use that easy but non-precise terminology.

Here’s what really, really, REALLY bugs me: when I choose to discuss an issue with someone who is treating me poorly, in an effort to improve the relationship or our necessary interactions, and then that person essentially throws up a wall and refuses to talk because they don’t like what I have to say. People do that a lot anyway, sure. But I am convinced that some people through the course of my life have been all too quick to throw out the baby with the bathwater when it comes to anything I say. If it’s something they don’t want to hear, they say, “You’re overwrought. You don’t know what you’re saying.” and then either studiously ignore me or what I tried to discuss, or they react with righteous indignation, even putting a burden of guilt and shame on me for daring to be open. They might even point the finger at me outright and denounce me to others. Not cool, people, not cool.

Because I’m that type of person. I don’t like having any kind of relationship with someone, whether it’s family, friends or acquaintances, or even work associates, that essentially forces me to bury any hurts or problems. I like to TRY, at least, to resolve the issue, to bring it to light and talk about it and free all from the burden of darkness. I think it’s much kinder to everyone. It does generally involve the peeling back of a scab, but then that sore is much more likely to heal over and not scar or get infected. It’s worth the initial discomfort.

But it angers me when my efforts are met with derision, nastiness, and blame. I have also tried to be somewhat open about the mental illness with which I struggle on occasion. And that, unfortunately, is seen by some people as a free pass, as a way to characterize my opinions as simply the effects of a frenzied mind. And they’re not. I might end up being not as soft and kind as I generally am (I think I’m pretty good at phrasing things well most of the time), and I do regret that. But that doesn’t mean that what I have to say is wholly without merit. If there’s a problem festering in our relationship, it’s NOT ALL ON ME. Face it: it might be you. Or at least partly you.

Let’s not be too quick to peel blame off ourselves and throw it back on another person, especially someone who is an easy target like one afflicted with mental illness. Let’s stand courageous and brave and compassionate and stop deflecting. Please just don’t write me off. My thoughts, opinions, and concerns have value. Please treat them accordingly.

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We never fully know what we’re getting into, do we?

Posted in Life of the mind, tagged , , , , , , , , , , , , on March 17, 2013 | Leave a Comment »

In some of my most challenging hours, I’ve told my husband I feel it’s unfair to him he’s had to deal with me and my mental health issues. (This cuts both ways, though, since I’ve also told him during similar moments that if he thinks it’s hard to deal with me — which he’s never said but which I assume he must think, since that’s how I roll [and we know what they say about assuming] — that it’s even more difficult to be me and to deal with me because I have to be with myself 24/7. Wouldn’t it be nice if I could just leave the room or the house and leave myself behind sometimes? Sigh.)

Sure, we’d talked about my issues before we married. Sure, he seemed to be OK with them. But honestly, how much experience did he really have with them? Even I hadn’t had a whole lot of experience with them — at 23, looking back, at least, I was just in the early years. Yes, I’d had some bad episodes, but in part I think I felt they were behind me because they came after some really big challenges, including a major heartbreak and beyond-disappointing treatment by the best friend I thought I’d marry. I really had no idea just how much a part of me those episodes would become, that they’d keep visiting, keep creeping down on me from the darkened attic in which I’d locked them away. But as in those gothic tales I love, the crazy wives in the attic never stay away permanently. Mine screams and yells and sometimes escapes, even setting fire to my life on occasion. No, I might lock her up again, but I can hear her every so often up there, pacing the floorboards and sometimes even moaning.

Nope, if I had no idea what I was in for, there is no way my husband did. And my heart aches for him because of that. At those times of difficulty, when I’m overtaken by darkness and crying hopeless, bitter sobs, I wish he could have a wife who’s not incapacitated for hours or a few days at a time. I just feel bad for him. He’s a great guy. He’s a great husband and has been unflaggingly supportive. I know he’s felt utterly helpless, unable to do anything for me, but he’s there, always hovering and ready to do whatever he can. I always appreciate that. Lesser mortals would have packed up and left long ago, I feel.

But it makes me realize that none of us ever has any idea what life will hold. We can make the best plans, predicated on our best educated guesses and experience, and we can move forward with certain expectations. But life always has surprises up its sleeve. At this stage of my life, I know that spouses can be unfaithful; they can leave; they can change their personalities and life goals entirely; they can even die far too young. Despite great education and job training, unemployment can strike for months, even a couple of years. Illness or disability can effectively rob someone of a functioning spouse. Things happen. And not just little things.

I had no idea what hand I’d be dealt in life when I was still growing up in my parents’ home; I still had little idea when I was a young adult. Even now, I’ve got a better idea, but I also am much more aware that plenty can life ahead of me, supposedly halfway through this mortal existence. Yeah, I wish my husband hadn’t gotten handed the mentally-ill me. But he did also get the really amazing me, who’s capable and really useful and fun and cute to boot. I’m not as thin as I’d like, but I look pretty young still and I’m attractive. Not bad, I think! :) Plus, I cook, I bake, I am a great gift-giver, I’m clever and creative, I pay bills, the list goes on … I’m really handy to have around.

So life has its challenges. It delivers a lot of unpleasant surprises. That’s the case for both me and my husband. But life has also been really good to us in so many ways, and we still have each other. There are yet many good and bad surprises ahead. In some ways, I’m not really eager to find out what they are. Yep, the disturbed wife in the attic will keep re-emerging; I’ll keep locking her up. And all kinds of strange things will emerge from the closets and from behind the bushes outside, even. But I’m just going to keep going and do the best I can to handle whatever comes a-knockin’. ‘Cause that’s life. And since I’ve made it this far, I’ll just try to make it further. 

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When I’m boiling over, just grab some oven mitts

Posted in Life of the mind, tagged , , , , , , , , , , , , on March 10, 2013 | 2 Comments »

I’ve just had another week (couple of weeks? month?) that ended horribly for me mentally. I ended up nearly incapacitated with hurt, anger, and hopelessness, curled up on my bed in a puddle of tears and surrounded by tissues that I’d flung wherever. And something that has struck me (yet again) is how difficult it is to explain this outcome and all the little triggers, inner and outer, that lead to it. I still am convinced that most people do not have the least idea how to deal with someone in this situation, or clearly on their way to it. This even (maybe especially?) includes family members, who have known me for years and have varying levels of knowledge about the struggles I face periodically, but who still just don’t KNOW what it’s like to be me at those moments or how to be WITH me.

I can’t blame them, most of the time, honestly. In their place, I might be unsure what to do or say (and how to handle any lightning bolts that come zinging my way out of the storm) and possibly just find it easier (safer?) to wait until that storm was over, the clouds all blown away, until I came near again. But when it comes down to it, in my own place, I can’t help at those times but feel angry and resentful that few people do know how to approach, how to offer support. And if family members, who are supposed to love me and be there for me, just as I’ve always tried to do the same for them, cannot be there for me, what does that say about them, or even about me? Those moments leave me mostly alone, feeling abandoned. I mentioned on Facebook, to friends, that that medium is a dicey place for trying to reach out for true support. How in the world do we use the one medium that keeps us in touch most readily to really connect, to really help each other, when it generally is limited to use as a place for sharing mundane details of day-to-day life, news of our kids’ accomplishments, and photos that show us in vacation spots or in our best moments? I do appreciate that when I put out that little message, some friends offered their support and care, just saying they were thinking about me. That did mean something. A lot, really.

But in real life, how in the world do I get support from those whom I need when I’m giving off a really bad, hopeless, negative, angry, and, yeah, even “crazy,” vibe? Most normal people would run away, far and fast. This is been one of my biggest concerns over the years as I’ve struggled with this beast of mental illness. I’m a pretty “normal” person most of the time, and people say they find me to be upbeat, happy, blessed with a great smile. I care and really put myself out there to help others. I do spend a lot of my time and energies trying to help those around me. But sometimes life just gets to me or I end up spending too much of my energies on others and then run dry in my own well.

boiling waterIt’s kind of like I’m boiling water on the stove, and as long as there’s still water in the pot, even if it’s only a half-inch of water, everything’s fine. But the second that water boils off, the pan is in big trouble. And despite my best efforts to balance my life (ha!) over the years, it’s still a really tricky act to pull off successfully, and I burn out sometimes. The pan bursts into flames as soon as it gets dry, and I need to be removed from the burner, cooled down, and filled back up again with water. Those are the times I need loving friends and family who, armed with oven mitts, are willing to help me cool off and refill my reserves. I sit on the stove sometimes and whistle like crazy, wondering where my mitted friends are, because it’ll take a lot longer to get myself filled up on my own merits. If left for too long, I stay hot and just get angry.

I know it’s hard to come near me at those times. I realize that. But I know I’m worth the effort. I know that I am a good, genuinely caring person who uses my talents and resources to be helpful to others. I’m fun, I’m generally kind, I’m pretty handy to have around in a lot of ways. So I give. Even just in a balance-sheet kind of way, I’m worth the investment. But during all those good moments, I still fear that those I care about aren’t taking the time to find out more about the few really bad, challenging moments that are my reality just as much as they are the good ones. I want my friends and family to want to really get to know me, to understand me a little better, so when the storms come, they’re ready for a little lightning. Because when the sun comes back out again, it will warm them even more radiantly.

All in all, this is probably true for every single one of us, whether we have mental illness or not. We need people in our lives who really get to know the whole us so they’re ready for the times we’re not our best selves. But it’s just magnified a lot more with mental illness, and society still places a stigma on it, where many people misunderstand and avoid in their ignorance. I wish we could all do better to stop this from happening. I would be happy to keep all this to myself. I’m not proud of who I am in my dark times. But that’s my reality, one I’m trying to mitigate and improve, bit by bit. So in the interest of increasing awareness and helping others, just by being open and sharing information, here I am, baring my soul. And thanks, from the bottom of my hot saucepan, to those dear friends who have braved the storms and held me until they’ve cleared. The world is brighter in so many ways because of you. Thank you, my dear ones.

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That traitor the brain

Posted in Life of the mind, tagged , , , , , , , , , on September 18, 2012 | 1 Comment »

I’ve been fascinated for years by how our own minds can turn inside-out on us. Memories can and often do turn out to be slippery and even downright wrong in any “normal” individual. Brains getting eaten up by dementia lose familiar people and chunks of time entirely. Brains that are schizophrenic or otherwise split can create whole other lives out of nothing.

Stories that take those quirks of the human mind and turn them into horror tales or mysteries are particularly gripping for me. The movie Memento is just one example of a story that turned a character’s reality on its head once it played itself out. Oh, what horrors our own brains can subject us to!

But those stories generally just get me thinking about the mysteries of our minds and the reality of life and its quirks. One tale that shook me and just felt more personal, however, was the true story of mathematician John Nash in the movie A Beautiful Mind. For those who haven’t seen it, skip over this paragraph. But those of you who have will know what I’m talking about: Nash is schizophrenic and ends up realizing that he’s created people and scenarios in his life that are completely fictional — nonexistent. The story here is that Nash, against all advice, decided to just will himself into getting rid of his symptoms, telling himself over and over again that the people he thought were friends simply were not there, even though he could see them.

I love how Ron Howard fashioned this film: he takes the viewers right into Nash’s “reality” and makes us believe that what he sees is real. And it’s not. It’s absolutely shocking, jarring, to find out that what we saw and accepted as truth was not real.

As I’ve learned over the years that some of the feelings I experience — depression, despair, racing thoughts, and so on — are actually just symptoms of out-of-whack brain chemistry, I’ve come to appreciate just how scary it is to be under the control of a brain that is not in itself in control. At times, I’ve been able to kind of step away from my own feelings for a bit and coolly and rationally observe that they are simply constructs of my biology. Some moments I’ve felt extreme sadness or irritability have had no logical basis in reality; they haven’t been caused by any external event that would normally make someone feel sad or angry. I’ve found some comfort in those times I’ve been able to do that; it hasn’t changed entirely how I felt, but it’s made me realize that my biology has hijacked my mind and that I don’t have to be completely a slave to it.

But it’s unnerving nonetheless to know that my brain — basically the seat of who I am — is a traitor. It takes me places I don’t want or need to go. It terrorizes me.

No, I don’t hallucinate. I don’t experience some of the particularly challenging effects of certain brain disorders. But from my own experience, and thanks to that window into Nash’s world that Howard created, I can certainly empathize with those who do experience that. It’s harrowing.

We rely so much on our mind, on our memories, on everything that we’ve stored within and taught our brains. We expect our minds to be infallible, to always tell the truth. We expect them to reflect reality. Because reality is what we think we’ve always lived. But what if our minds aren’t storing memories quite as neatly as we’d thought? What if they are reflecting to us a life in a funhouse mirror?

I guess I’d like to thank my brain for mostly getting it right (I think …). And I’d like to make others aware that some people’s brains just don’t do what they should. That reality is not always real for everyone, that even depression is a state that feels absolutely and terribly real to its sufferer but looks very different on the outside in everyone else’s reality. That sometimes we have to visit someone else’s world so we can help them leave it behind. A bridge must be made between the two realities.

I’m grateful for the people who have taken the time to try to understand my reality, to try to empathize so they can offer the right words or gestures of help. I’m hoping that in writing about my particular mind and where it’s led me, it might help others as they build those bridges.

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Backtracking here … some official words about mental illness

Posted in Life of the mind, tagged , , , , , , , on August 14, 2012 | 2 Comments »

I realized the other day that though I started this blog in part to share my experiences with mental illness, I haven’t necessarily given some good definitions of the term or the different kinds of illness that people may experience. As I have written about how I feel and continued to get feedback from friends, I realize that I haven’t made clear enough what exactly “official” mental illnesses do, and how they are different from the regular ups and downs that everyone experiences in normal life. So here goes.

From the National Alliance on Mental Illness comes this information about depression:

Unlike normal emotional experiences of sadness, loss or passing mood states, major depression is persistent and can significantly interfere with an individual’s thoughts, behavior, mood, activity and physical health. …

Depression occurs twice as frequently in women as in men, for reasons that are not fully understood. For more please visit NAMI’s section for Women and Depression. More than one-half of those who experience a single episode of depression will continue to have episodes that occur as frequently as once or even twice a year. Without treatment, the frequency of depressive illness as well as the severity of symptoms tends to increase over time. Left untreated, depression can lead to suicide.

Major depression, also known as clinical depression or unipolar depression, is only one type of depressive disorder. Other depressive disorders include dysthymia (chronic, less severe depression) and bipolar depression (the depressed phase of bipolar disorder). People who have bipolar disorder experience both depression and mania. Mania involves unusually and persistently elevated mood or irritability, elevated self-esteem and excessive energy, thoughts and talking.

Now for a definition of bipolar disorder, also from NAMI:

Bipolar disorder is a chronic illness with recurring episodes of mania and depression that can last from one day to months. This mental illness causes unusual and dramatic shifts in mood, energy and the ability to think clearly. Cycles of high (manic) and low (depressive) moods may follow an irregular pattern that differs from the typical ups and downs experienced by most people. The symptoms of bipolar disorder can have a negative impact on a person’s life. Damaged relationships or a decline in job or school performance are potential effects, but positive outcomes are possible.

Two main features characterize people who live with bipolar disorder: intensity and oscillation (ups and downs). People living with bipolar disorder often experience two intense emotional states. These two states are known as mania and depression. A manic state can be identified by feelings of extreme irritability and/or euphoria, along with several other symptoms during the same week such as agitation, surges of energy, reduced need for sleep, talkativeness, pleasure-seeking and increased risktaking behavior. On the other side, when an individual experiences symptoms of depression they feel extremely sad, hopeless and loss of energy. Not everyone’s symptoms are the same and the severity of mania and depression can vary.

More than 10 million Americans have bipolar disorder. Because of its irregular patterns, bipolar disorder is often hard to diagnose. Although the illness can occur at any point in life, more than one-half of all cases begin between ages 15 and 25. Bipolar disorder affects men and women equally.

As I do believe I have mentioned, it seems apparent (as much as is possible with these complex brain issues) that I have a form of bipolar disorder. One doctor, who has written a fine book and puts information on a website as well, has a great explanation that is quite detailed showing what a broad “spectrum” of symptoms people can experience anywhere between the “unipolar” extreme of clinical depression and the other extreme of “bipolar I,” which includes manic episodes and full delusional mania. For a really detailed explanation, visit Dr. Phelps’ site on this particular topic. In other words, I’m somewhere in the “middle of the spectrum.”

I’d say I’m typically a fairly “normal” person. When I’m feeling pretty normal, I manage to weather ups and downs of life with maybe a little complaining and some irritability. I think most people understand what THAT’s like! But when I’m pushed outside of those “normal” chemical boundaries, then I find it either impossible or much more challenging to weather the regular ups and downs with my regular coping tools. I am on medication that makes it much easier for me to stay in the “normal” frame of mind most of the time. But even so, medication doesn’t put me in that “normal” place 100% of the time. I still end up in an extreme irritable state or depressive place every so often.

One point I’d like to make clear is this: as Dr. Phelps says:

Depression is Not a Moral Weakness.

It Has a Biological Basis. 

He shows there are real proofs to back up this statement.

A view of the hippocampus from Psycheducation.org

The other point to make clear is this: doing the normal things that “normal” people do who are facing some sadness or frustration won’t kick someone who has a brain chemistry problem back into healthy chemistry and normal ways of seeing things. Trying to put a smile on your face or just counting your blessings or looking at all the positives won’t do the trick entirely. I’m not saying they’re not worthwhile, but if someone has gotten into clinical depression, those “tips” won’t fix it.

That’s why I am writing about this topic. I’d like more people to understand what it feels like, what it means, to grapple with a mental illness. If you haven’t grappled with it yourself, it’s hard to grasp what it’s like. So I hope that by writing here, I can bring more understanding to those of you who know me or someone else who does have a chemical/biological issue. I’d like to feel that when I say I’m getting depressed, I’m not just complaining about how life is a little extra hard. I’m actually saying I’m struggling and I need support. I’m asking for help. (And honestly, I don’t do that very often, I think. I like to go out and help other people, but I hate feeling “weak.”) And I think this is what many others in my situation are trying to express as well. I don’t want to be seen as a whiny complainer who needs to just buck up and get a stiff upper lip and understand that life can be hard. I just want to be understood a bit more as someone who has a particular biological problem that sometimes makes life a little more challenging to deal with than usual.

I don’t know how successful I’ll be. I just hope that I can reach a few people. If I do, I suppose that’ll be success. Thanks for trying to learn more and understand!

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Too depressed to think of a name for this post

Posted in Life of the mind, tagged , , , , , , , , on August 12, 2012 | 5 Comments »

Sometimes the depression end of the mental illness that I get to enjoy hits me like a nice thick fog with claws. I can hear it coming but still can’t quite escape its nasty grip. It grabs on and envelops me, surrounding me in a dark cloud no matter which way I try to turn. But pretty soon I don’t try to turn any way anymore.

This ugly depression erases companionship out of my life and surrounds me with a dark cloud, and, to add insult to injury, it zaps me of the motivation to make a nicer-looking illustration with Photoshop.

It’s sadness and frustration and hopelessness all rolled into one entity. It’s wishing all that feels wrong could just wink out of existence, that somehow I could wave a magic wand and have everything better. On extreme times, it’s wishing I could wink out of existence. The cloud allows me to see out, and I know others can see in just fine, but they can’t tell that anything’s happening. It somehow eerily makes others blind to my inward suffering. I end up feeling alone, isolated, and misunderstood.

I want to scream and cry sometimes. I want to talk it out. But talking doesn’t help because there are no solutions, and the people around me have nothing to say that can change the stark reality of the dreary fog. I want someone to have answers. I so desperately want that. I want someone to fix it. When I’m pushed into the depression it’s usually because circumstances in my life have become a bit too much for me to be able to handle anymore. This time around, it’s all the things I wrote about earlier in the week. It’s not having any time to myself to think or write or just care for my inner self for the whole summer. It’s having huge expenses and a bunch of seemingly nonstop little ones drain my bank account this year and make me nervous about spending any little sum, so I don’t even want to take all of my kids to see a full-price movie for a nice change of pace (even at matinee prices, it would cost almost 40 bucks for the five of us to see “Brave.” I mean, come ON!). It’s this darn broken foot. It’s the frustration of having no control over almost anything in my life lately. So many things have conspired to drain me of my resolve and my strength, and now I am down to the level of near-hopelessness.

Oh, I wish a miracle would happen. I wish my blog and website could be wildly successful. I wish I could get some time and inspiration to write the book I’ve been planning and researching for months now: and to feel that it’s even possible to get it published if I do manage to get that mythical time and inspiration together. I wish that I could find the motivation in myself to lose some weight. But with a broken foot, the exercise part of the equation is more than challenging: the recumbent bike sessions I’ve been doing this week aren’t going to cut it.

I wish that I could feel comfortable enough with more people to really say how I feel, but I don’t trust many people to do so. I’m pretty much afraid of how people will respond. My husband at least has learned over the years to stop saying anything that I could remotely construe as platitudes (because those make me go from 0 to 60 in angry miles almost instantaneously), but now he just says nothing. That’s only a slight improvement on the cliches and pep talks; I just wish he could say something that would really comfort me or encourage me. I wish I could find it in me not to feel at all resentful that he can’t do this for me, because it’s really not his fault. Very few people are very good at dealing with someone who’s laboring under the fog of depression and that utter hopelessness. That’s what’s so frustrating: it isolates so quickly and easily. No one knows how to respond. I know. I get that. But it still makes me feel alone, and angry, and doubly sad. I am deathly afraid of people’s judgment, of their fear, of the possibility that they’ll think I’m weak or that I am just a complainer. (I usually feel fairly strong. That’s the problem: I’m too strong. So even when I feel weak and hopeless, everyone else still thinks I’m fine and just leaves me alone.)

I’m afraid. I’m tired. I’m exhausted. I’m actually just overflowing with “sick-and-tired”-ness. I’m at wit’s end. I’m utterly sick, sick, sick of feeling like this on a somewhat regular basis, of feeling that life has me cornered, that I have no control over my own destiny, that I’m Sisyphus pushing, pushing, pushing on that rock. I’m SICK of looking at that rock.

That’s the thing: I’m not the type of person who expects to have anything handed to me on a silver platter. I don’t think the world owes me a living. It’s the opposite, really. I work hard all the time to take care of myself and my kids and my husband. I work hard in volunteer roles to help other people. My heart goes out to everyone else I hear about who’s in need in any way and I wish I could help. I am always doing something that’s practical in some way. But when I get into this down mode, I wish that all of my efforts would finally bear fruit, that the rock on the hill I constantly am climbing would just sprout some legs already and MOVE, dammit. My arms are tired.

Again, I guess that’s why I’m writing this blog. I want to put into words what I experience, in the small hope that what I say can be of help to someone else out there climbing their own hill, pushing on their own insurmountable, immovable rock. Man, I wish I could just pick up your rock for you and toss it away, let it crumble into a million pieces as it rolls down and hits the valley floor. I wish you could do the same for my rock. And I wish that I could help everyone out there feel more comfortable talking to someone in my position right now, make you feel able to say something encouraging, able to sit it out and not run away cringing. I want to feel less alone. I want others like me to feel less alone.

It might be another thing that’s impossible, but like all the other goals in my life that seem impossible right now, I just have the tiniest hope that they might, might, MIGHT be possible, in some other universe in which I am happy and capable again.

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The best moms … know their limits

Posted in Home life, Life of the mind, tagged , , , , , , , , , , on August 6, 2012 | Leave a Comment »

Much talk has been made over the years and even recently about “good moms” or moms who “do everything for their kids” and so on. The Time piece titled “Are You Mom Enough?” stirred quite a bit of controversy and buzz. But there are clearly as many ways to parent out there as there are parents. I would venture to say that a number of those methods employed by some parents are probably not so great, but in general, most parents get the job done passably well. But I think what bugs me the most is when people make judgments about parents whose kids are doing just fine and start saying that their parenting style is lacking. About a month ago, right around the time I was in dire need of a little me time, a Facebook “friend” posted that she was so disappointed in all the mothers who were complaining that their kids were driving them crazy. She ended by saying, “It’s about attitude!” I gently responded with a couple of kindly worded comments to the effect that just because some of us mothers were rightfully saying our kids were making us nuts (this is summertime, people!), it doesn’t make us bad parents. Just normal. A few hours later, my comments (which were completely appropriate) had been deleted. What the heck, man?! But that’s a whole other story.

Let’s just say that I consider myself in many ways a pretty normal, typical mom. For years, women have dreaded the summer months in which a passel of kids would be constantly underfoot and looked forward to school starting again (even a popular Christmas song refers to the relatively short winter break: “And mom and dad can hardly wait for school to start again!”). So feeling nutty here at the end of the summer does not make me an unusual mom, let alone a bad one.

I will say that what makes a good mom, I think, is knowing your limits. I figured out long ago that, given my personality and my mental health issues, having consistent and dependable time alone, preferably weekly, can keep me going at my best. I’m a gas-guzzling, large-capacity van, let’s just say, at this stage of my life, and I need frequent infusions of gas, oil, and water to keep me running effectively and continually transporting my load of children through their lives. I also need good quarterly maintenance.

Unfortunately, the summer months disrupt my fairly well-planned and nicely balanced routine that keeps me at my mothering best. I know this going in and start feeling a little nervous come May. But I do the best I can to plan and make allowances. And then I still end up running low on gas and oil and burning out at least once, sometimes twice, usually in the middle and at the end of the summer. A month ago, I felt myself snapping, stretched to my utter capacity for patience and sacrifice, and I scheduled a Saturday for myself. I hadn’t had more than an hour to myself in about two months. I hired a niece to babysit for the day and I went for a lovely bike ride and then had lunch and manicures and facials at the beauty school with a friend. It was wonderful. And not nearly long enough. I was not ready after merely seven hours to get back into the grind. The timing the next day of that Facebook post of my friend (unnamed here) was very unfortunate. I thought it was insensitive and judgmental. After having my comments deleted, I deleted the friend (this was not this person’s first “offense” at overreacting to innocuous comments, either). At the time, I felt it was the simplest and quickest solution to help reduce the negative influences in my life. Again, I suppose that’s a whole other story.

Mama’s stretched to snapping: it’s not a pretty picture.

A month later, I am back at snapping point. Having four children with all their demands (and whining and fussing amongst themselves, which can just grate on one’s nerves) around nonstop; then having to make sure the two older ones get to a girls’ camp; then the oldest, who can actually babysit, be gone for an entire week at band camp; then breaking my FOOT and being unable to do the things I need and want to do; then not having any time or brain-space for thinking clearly in order to work on the writing projects that mean a lot to me personally; having other big responsibilities on my plate that still need to be taken care of, broken foot or not (band boosters [the band director needs us to raise $150,000 for new instruments over the next three years?], being in charge of my university’s local alumni chapter, other volunteer things); then throw in PMS, and it’s a recipe for burnout. (Not to mention having all kinds of large and small expenses pop up until the point of ridiculousness this past four or five months, and the astonishing number of things that have kept breaking down on me the past few months till where I’m begging the financial universe for mercy…) It’s the rubber band being stretched entirely too far. It SNAPS.

I wish I could be the kind of mom who enjoys every single moment with her children. I wish I could savor every moment during the summer with them. I have done some fun things with them here and there. I just haven’t been their everything for every moment. (Nor do I think that is good for them, anyway.) I am still absolutely ASTONISHED at the amazing journey a dear friend took this summer with her seven children. They drove in a pop-up camper all the way from the western United States to Alaska and spent two months making the trip. I would have gone nuts probably on the second week, the third at the latest. How she did it is beyond me. But I am in awe and I tip my hat to her. What an amazing experience for them all. But me, I’m just getting my kids through the summer at home, barely gripping on to my sanity.

I am still trying to figure out right now how to just survive the next eight days until my children start school. It sounds silly now that I’ve managed to get through a whole summer, but the last days are seeming like an eternity because I’ve already snapped. I have no spring left. I pretty much want to curl into a ball in my bedroom, take some kind of sleeping pills so I can coast through the next days mostly unconscious, and lock the door.

I would probably be a slightly more “normal” mom if I didn’t have my mental health issues. But I do the best I can to stay on top of them. I take medication, check in with my psychiatrist, and have regular visits with a therapist. I try to be reasonable in my expectations. I’ve been trying to repeat all kinds of useful and inspirational mantras the past weeks to keep myself positive enough to survive until I have some time alone to just regroup in pretty much every way. I just don’t know who or how to ask for help. And unfortunately, when I mention my feelings and am aware that I am being stretched too far, I end up with mostly unwanted advice (one-sentence cliches that too often start with “just”… if you’d just do X, Y or Z, you’d be fine. Or just “let go and let God.” Yeah, I know all that. Doing it is really the battle, isn’t it?) I don’t want advice. I want support and practical help. Someone want to take my girls on a vacation for a few days? That would be most welcome. No mantras, no judgment. Just support and caring.

As you can see from this long post, my manic side is coming out a bit. Sorry ’bout that. But it’s my reality. I am who I am, and I’m daily trying to improve the parts of me that can be improved, and manage the things I can’t change (genetics, brain chemistry: I’m talking ’bout you). But I’m still working on it. I’m going to fall down a lot and fall short a whole lot. I just wish I were better able to figure out ways to practically deal with the snapping of the rubber band before it stretches too far. My aspirations for being a great mom are simply in knowing my limits and not pushing past them. I’ve given my children so much and taught them so much and love them a great deal. Yeah, I need some time alone, away from them, sometimes in order to be able to continue to be a good mom to them. I just want to be able to stave off the snapping.

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Spirituality and mental illness

Posted in Life of the mind, tagged , , , , , , , , , , , on April 22, 2012 | 8 Comments »

As a faithful follower of Christ my entire life, my spirituality and connection to the divine have always meant everything to me. My life would not be what it is without my knowledge of and faith in God, my Heavenly Father, and His Only Begotten Son, Jesus Christ. I have always depended on the great gift of the Comforter that Christ left with his disciples, the Holy Ghost or the Holy Spirit. I’ve been taught since I was young how to understand what the Spirit is trying to communicate to me through his still, small voice. It is explained to people in various ways because it can affect and teach each of us a little differently, so each of us must learn exactly how he sounds to us. A scripture in my faith’s canon says that the Holy Ghost will speak to me in my mind and in my heart, and that really rings true in my experience. I can often just feel ideas popping into my head, and I can feel in my heart a good feeling that confirms they are from a trusted source.

But my challenges with my mental health over the years have thrown wrenches into that beautiful process off and on, in various ways. The depression, irritability and anger I’ve felt have blocked that positive flow of messages from a loving God, leaving me to feel adrift and alone and cut off. I’ve sometimes felt that there are just no answers coming to prayers, and I’ve given up asking. I’ve even gotten angry at the heavens then for leaving me in that isolated state, with no communication coming my way. All of it leads to me feeling that I’m alone and undeserving of God’s love, that for some reason he just isn’t paying attention.

Even medication I’ve taken has caused difficulties of its own. As I wrote in my previous post about my long list of medications over the years, when I tried Abilify for a few months about a year and a half ago, I felt absolutely numb. It was unnerving because I’m usually a bubbly person who often sees the bright side of things and, in terms of faith, relies on (even might take for granted) the wonderful peaceful feeling that comes from turning to prayer and scriptures and other messages of a spiritual nature. I know that when I listen to good music that reminds me of God and Christ or when I read a scripture or an inspirational magazine article, I’ll feel uplifted and recharged. I’ll feel the influence of the Holy Ghost, a marvelous gift. So for the few months I took that medication, I didn’t feel anything, including those spiritual feelings. I didn’t feel bad, but I didn’t feel good. I didn’t feel peaceful or Spirit-filled whenever I did all the things that would normally make me feel that influence. It bothered me a great deal. It was a strange feeling to go to church, where I would normally feel happy and inspired, and just feel … nothing. A black hole where there would normally be gardens in bloom with all colors of gorgeous flowers of faith.

What got me through that time was just the knowledge I had still in my mind about all the experiences I could remember. My brain had stored away the memories of knowing that God had answered my prayers at specific times and that I knew that the Holy Spirit had usually been in my heart. I couldn’t feel it then, but I trusted in my head that it had happened before and would come back to me, no matter what wacky tricks this medication was playing with me. And sure enough, when I got off that medicine and got to mostly myself again, I did feel that peace again. The black hole was gone, filled again with light.

So the wrong medication can play tricks on faith. Depression and other mental illnesses can do their own brand of damage. I’ve been through that emptiness before and am kind of feeling it again, and I’m sure I’ll keep experiencing it throughout this mortal existence. It’s not pleasant, and I’d rather not have to go through this. But my feeling is that this is my cross to bear, so I’m doing the best I can to handle it gracefully. Saying I’m doing my best is the truth, but even then it feels silly to say because “my best” can sometimes not be a whole lot. I feel alone inside of myself and that God isn’t sending me answers or the positive feelings I need. But I know in the part of my brain that’s not “messed up” somehow that he’s still there.

I think what I want most to do here is connect with other people who experience these feelings. I think that faith communities are slowly doing better at directly and publicly addressing matters of mental health in the context of religious belief, and that’s wonderful. But depression and other mental illnesses work hard to isolate their sufferers. Those of us who know in our minds and in our hearts that God is aware of us and loves us but sometimes don’t really “feel” it the way we should because of neurochemical vagaries can talk to each other to buoy each other up not just in our specific trials but in our faith. We’ve been given a great gift to have a Savior and the good news of the gospel he has taught. I believe there are still miracles today. Honestly, though, some days, amid the clouds that create a darkness of despair in my heart and head, I don’t feel a conviction that God will work a miracle in my life. And since I know that isn’t true, deep down, I have to work hard to combat the feeling that is false. A dear, dear friend of mine told me a couple of times that she and her mother were able to talk to a well-known Christian writer of our faith after he gave a talk they attended. She wrote me to remind me what he had told them: “He suffers from depression and told my mom and me that being faithful means that you remember the Lord is with you and mindful of you even when the depression doesn’t let you ‘feel’ it. He is still there!” I just cling to that like a little round life saver thrown to me in an ocean of big waves. Eventually the waves die down, and I’m still clinging on for dear life: alive and well yet again. Still.

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