Tag: depression

So glad I could help

Few things give me greater satisfaction than having friends (or even just acquaintances) come to me as a resource when faced with questions relating to mental health. Perhaps in part it’s nice to know that, despite my sometimes quirks or slightly “off” behavior, they still consider me a valuable source of information and even wisdom. It’s nice to be valued, to be needed, to be seen as able to dispense tidbits of guidance. It’s even better to feel that maybe, just maybe, everything I’ve gone through can help someone else, that I can maybe help cut short the long journey for them just a little, provide a quicker route that still gets them to a good destination.

I can tell you about my therapists, my psychiatrists (i.e., medicine-dispensers) and medications, the books I’ve read, the ups and downs and ins and outs. I can talk about the wacky ways my mind is able to play tricks on me, despite my hyper-awareness that it can, and a sort of vigilance about trying to think clearly and navigate life from a kind of emotionally handicapped state. I can share the surreal-ness of dealing with others who have been in worse shape than I have ever been, of their living in (and trying to reason from within) realities that just don’t line up with the reality the rest of us know. I can look back on my own experiences and say, “I wish I could have seen the whole picture from the beginning, because I would have gone right to ___.” Man, does it feel good to think that I might be helping someone jump over hurdles with relative ease and speed that I’ve had to walk around, re-jump, and move around countless times.

Again, in this latest discussion, a friend and I agreed that it would make life so much better for everyone if all of us could just open up about our real challenges. Most of us have something, a weakness or an addiction or a habit or an illness, whatever, that we find embarrassing or shameful somehow, that we would really rather NOT talk about. And there are plenty of stigmas left in our culture about lots of problems, including mental illness. It just doesn’t help that there aren’t really clear-cut answers (let alone even questions) about how our minds and emotions, etc., work. The science is much clearer with other health problems. So it makes mental illness still hazy and misunderstood and even a little scary for people who don’t have to face it head-on regularly. If just more of us SPOKE UP! Whatever your shame, your stigma, your weakness, your difficulty, just talk about it. Yeah, unfortunately, you’re probably still going to be judged and misunderstood by some, maybe many. But you could help so many others.

oven mitt

I feel so weak and so isolated sometimes, and then nervous about talking about my experience. Because like most everyone, I just want to be liked, to be understood, to be respected and appreciated. And that stigma can put a big roadblock in the way of that satisfying goal. But I want to help other people. I want to pave the way for less stigma, for more understanding, even for better science (somehow). So, I talk. I write. I blog. I’m open. It can be nerve-wracking and painful. But I’m doing it anyway. Because I’m glad I can help. So call me or write if you have questions or need advice for a family member or friend. Reach out. Sometimes you might need oven mitts, but pretty much I’ll always be happy to talk, if I can help someone else.

Don’t use my mental illness as an excuse to write off everything I say or do

I’ve been thinking about this idea for a long, long, LONG while, and I’ve put it in words now after reading some others’ blogs. Here it is: My mental illness is NOT an excuse for people with whom I interact to just write off anything I say or do that they disagree with. And yes, this extends to opinions that I have that are carefully considered, based on life experiences and, yes, even my interactions with YOU, who are so eager to chalk up my opinions to craziness.

I’m not going to say that in my darkest moments (and the times I feel most ashamed of myself and my behavior) I never say something I regret or that I don’t even completely, 100%, mean. I do. But, honestly, DON’T WE ALL? We all get tired, angry, frustrated, annoyed, irritated, strung out and worn out, and say and do things we don’t mean or that we just regret. So in this way, I’m really no different than any “normal” person, if you’d like to use that easy but non-precise terminology.

Here’s what really, really, REALLY bugs me: when I choose to discuss an issue with someone who is treating me poorly, in an effort to improve the relationship or our necessary interactions, and then that person essentially throws up a wall and refuses to talk because they don’t like what I have to say. People do that a lot anyway, sure. But I am convinced that some people through the course of my life have been all too quick to throw out the baby with the bathwater when it comes to anything I say. If it’s something they don’t want to hear, they say, “You’re overwrought. You don’t know what you’re saying.” and then either studiously ignore me or what I tried to discuss, or they react with righteous indignation, even putting a burden of guilt and shame on me for daring to be open. They might even point the finger at me outright and denounce me to others. Not cool, people, not cool.

Because I’m that type of person. I don’t like having any kind of relationship with someone, whether it’s family, friends or acquaintances, or even work associates, that essentially forces me to bury any hurts or problems. I like to TRY, at least, to resolve the issue, to bring it to light and talk about it and free all from the burden of darkness. I think it’s much kinder to everyone. It does generally involve the peeling back of a scab, but then that sore is much more likely to heal over and not scar or get infected. It’s worth the initial discomfort.

But it angers me when my efforts are met with derision, nastiness, and blame. I have also tried to be somewhat open about the mental illness with which I struggle on occasion. And that, unfortunately, is seen by some people as a free pass, as a way to characterize my opinions as simply the effects of a frenzied mind. And they’re not. I might end up being not as soft and kind as I generally am (I think I’m pretty good at phrasing things well most of the time), and I do regret that. But that doesn’t mean that what I have to say is wholly without merit. If there’s a problem festering in our relationship, it’s NOT ALL ON ME. Face it: it might be you. Or at least partly you.

Let’s not be too quick to peel blame off ourselves and throw it back on another person, especially someone who is an easy target like one afflicted with mental illness. Let’s stand courageous and brave and compassionate and stop deflecting. Please just don’t write me off. My thoughts, opinions, and concerns have value. Please treat them accordingly.

We never fully know what we’re getting into, do we?

In some of my most challenging hours, I’ve told my husband I feel it’s unfair to him he’s had to deal with me and my mental health issues. (This cuts both ways, though, since I’ve also told him during similar moments that if he thinks it’s hard to deal with me — which he’s never said but which I assume he must think, since that’s how I roll [and we know what they say about assuming] — that it’s even more difficult to be me and to deal with me because I have to be with myself 24/7. Wouldn’t it be nice if I could just leave the room or the house and leave myself behind sometimes? Sigh.)

Sure, we’d talked about my issues before we married. Sure, he seemed to be OK with them. But honestly, how much experience did he really have with them? Even I hadn’t had a whole lot of experience with them — at 23, looking back, at least, I was just in the early years. Yes, I’d had some bad episodes, but in part I think I felt they were behind me because they came after some really big challenges, including a major heartbreak and beyond-disappointing treatment by the best friend I thought I’d marry. I really had no idea just how much a part of me those episodes would become, that they’d keep visiting, keep creeping down on me from the darkened attic in which I’d locked them away. But as in those gothic tales I love, the crazy wives in the attic never stay away permanently. Mine screams and yells and sometimes escapes, even setting fire to my life on occasion. No, I might lock her up again, but I can hear her every so often up there, pacing the floorboards and sometimes even moaning.

Nope, if I had no idea what I was in for, there is no way my husband did. And my heart aches for him because of that. At those times of difficulty, when I’m overtaken by darkness and crying hopeless, bitter sobs, I wish he could have a wife who’s not incapacitated for hours or a few days at a time. I just feel bad for him. He’s a great guy. He’s a great husband and has been unflaggingly supportive. I know he’s felt utterly helpless, unable to do anything for me, but he’s there, always hovering and ready to do whatever he can. I always appreciate that. Lesser mortals would have packed up and left long ago, I feel.

But it makes me realize that none of us ever has any idea what life will hold. We can make the best plans, predicated on our best educated guesses and experience, and we can move forward with certain expectations. But life always has surprises up its sleeve. At this stage of my life, I know that spouses can be unfaithful; they can leave; they can change their personalities and life goals entirely; they can even die far too young. Despite great education and job training, unemployment can strike for months, even a couple of years. Illness or disability can effectively rob someone of a functioning spouse. Things happen. And not just little things.

I had no idea what hand I’d be dealt in life when I was still growing up in my parents’ home; I still had little idea when I was a young adult. Even now, I’ve got a better idea, but I also am much more aware that plenty can life ahead of me, supposedly halfway through this mortal existence. Yeah, I wish my husband hadn’t gotten handed the mentally-ill me. But he did also get the really amazing me, who’s capable and really useful and fun and cute to boot. I’m not as thin as I’d like, but I look pretty young still and I’m attractive. Not bad, I think! 🙂 Plus, I cook, I bake, I am a great gift-giver, I’m clever and creative, I pay bills, the list goes on … I’m really handy to have around.

So life has its challenges. It delivers a lot of unpleasant surprises. That’s the case for both me and my husband. But life has also been really good to us in so many ways, and we still have each other. There are yet many good and bad surprises ahead. In some ways, I’m not really eager to find out what they are. Yep, the disturbed wife in the attic will keep re-emerging; I’ll keep locking her up. And all kinds of strange things will emerge from the closets and from behind the bushes outside, even. But I’m just going to keep going and do the best I can to handle whatever comes a-knockin’. ‘Cause that’s life. And since I’ve made it this far, I’ll just try to make it further. 

When I’m boiling over, just grab some oven mitts

I’ve just had another week (couple of weeks? month?) that ended horribly for me mentally. I ended up nearly incapacitated with hurt, anger, and hopelessness, curled up on my bed in a puddle of tears and surrounded by tissues that I’d flung wherever. And something that has struck me (yet again) is how difficult it is to explain this outcome and all the little triggers, inner and outer, that lead to it. I still am convinced that most people do not have the least idea how to deal with someone in this situation, or clearly on their way to it. This even (maybe especially?) includes family members, who have known me for years and have varying levels of knowledge about the struggles I face periodically, but who still just don’t KNOW what it’s like to be me at those moments or how to be WITH me.

I can’t blame them, most of the time, honestly. In their place, I might be unsure what to do or say (and how to handle any lightning bolts that come zinging my way out of the storm) and possibly just find it easier (safer?) to wait until that storm was over, the clouds all blown away, until I came near again. But when it comes down to it, in my own place, I can’t help at those times but feel angry and resentful that few people do know how to approach, how to offer support. And if family members, who are supposed to love me and be there for me, just as I’ve always tried to do the same for them, cannot be there for me, what does that say about them, or even about me? Those moments leave me mostly alone, feeling abandoned. I mentioned on Facebook, to friends, that that medium is a dicey place for trying to reach out for true support. How in the world do we use the one medium that keeps us in touch most readily to really connect, to really help each other, when it generally is limited to use as a place for sharing mundane details of day-to-day life, news of our kids’ accomplishments, and photos that show us in vacation spots or in our best moments? I do appreciate that when I put out that little message, some friends offered their support and care, just saying they were thinking about me. That did mean something. A lot, really.

But in real life, how in the world do I get support from those whom I need when I’m giving off a really bad, hopeless, negative, angry, and, yeah, even “crazy,” vibe? Most normal people would run away, far and fast. This is been one of my biggest concerns over the years as I’ve struggled with this beast of mental illness. I’m a pretty “normal” person most of the time, and people say they find me to be upbeat, happy, blessed with a great smile. I care and really put myself out there to help others. I do spend a lot of my time and energies trying to help those around me. But sometimes life just gets to me or I end up spending too much of my energies on others and then run dry in my own well.

boiling waterIt’s kind of like I’m boiling water on the stove, and as long as there’s still water in the pot, even if it’s only a half-inch of water, everything’s fine. But the second that water boils off, the pan is in big trouble. And despite my best efforts to balance my life (ha!) over the years, it’s still a really tricky act to pull off successfully, and I burn out sometimes. The pan bursts into flames as soon as it gets dry, and I need to be removed from the burner, cooled down, and filled back up again with water. Those are the times I need loving friends and family who, armed with oven mitts, are willing to help me cool off and refill my reserves. I sit on the stove sometimes and whistle like crazy, wondering where my mitted friends are, because it’ll take a lot longer to get myself filled up on my own merits. If left for too long, I stay hot and just get angry.

I know it’s hard to come near me at those times. I realize that. But I know I’m worth the effort. I know that I am a good, genuinely caring person who uses my talents and resources to be helpful to others. I’m fun, I’m generally kind, I’m pretty handy to have around in a lot of ways. So I give. Even just in a balance-sheet kind of way, I’m worth the investment. But during all those good moments, I still fear that those I care about aren’t taking the time to find out more about the few really bad, challenging moments that are my reality just as much as they are the good ones. I want my friends and family to want to really get to know me, to understand me a little better, so when the storms come, they’re ready for a little lightning. Because when the sun comes back out again, it will warm them even more radiantly.

All in all, this is probably true for every single one of us, whether we have mental illness or not. We need people in our lives who really get to know the whole us so they’re ready for the times we’re not our best selves. But it’s just magnified a lot more with mental illness, and society still places a stigma on it, where many people misunderstand and avoid in their ignorance. I wish we could all do better to stop this from happening. I would be happy to keep all this to myself. I’m not proud of who I am in my dark times. But that’s my reality, one I’m trying to mitigate and improve, bit by bit. So in the interest of increasing awareness and helping others, just by being open and sharing information, here I am, baring my soul. And thanks, from the bottom of my hot saucepan, to those dear friends who have braved the storms and held me until they’ve cleared. The world is brighter in so many ways because of you. Thank you, my dear ones.

That traitor the brain

I’ve been fascinated for years by how our own minds can turn inside-out on us. Memories can and often do turn out to be slippery and even downright wrong in any “normal” individual. Brains getting eaten up by dementia lose familiar people and chunks of time entirely. Brains that are schizophrenic or otherwise split can create whole other lives out of nothing.

Stories that take those quirks of the human mind and turn them into horror tales or mysteries are particularly gripping for me. The movie Memento is just one example of a story that turned a character’s reality on its head once it played itself out. Oh, what horrors our own brains can subject us to!

But those stories generally just get me thinking about the mysteries of our minds and the reality of life and its quirks. One tale that shook me and just felt more personal, however, was the true story of mathematician John Nash in the movie A Beautiful Mind. For those who haven’t seen it, skip over this paragraph. But those of you who have will know what I’m talking about: Nash is schizophrenic and ends up realizing that he’s created people and scenarios in his life that are completely fictional — nonexistent. The story here is that Nash, against all advice, decided to just will himself into getting rid of his symptoms, telling himself over and over again that the people he thought were friends simply were not there, even though he could see them.

I love how Ron Howard fashioned this film: he takes the viewers right into Nash’s “reality” and makes us believe that what he sees is real. And it’s not. It’s absolutely shocking, jarring, to find out that what we saw and accepted as truth was not real.

As I’ve learned over the years that some of the feelings I experience — depression, despair, racing thoughts, and so on — are actually just symptoms of out-of-whack brain chemistry, I’ve come to appreciate just how scary it is to be under the control of a brain that is not in itself in control. At times, I’ve been able to kind of step away from my own feelings for a bit and coolly and rationally observe that they are simply constructs of my biology. Some moments I’ve felt extreme sadness or irritability have had no logical basis in reality; they haven’t been caused by any external event that would normally make someone feel sad or angry. I’ve found some comfort in those times I’ve been able to do that; it hasn’t changed entirely how I felt, but it’s made me realize that my biology has hijacked my mind and that I don’t have to be completely a slave to it.

But it’s unnerving nonetheless to know that my brain — basically the seat of who I am — is a traitor. It takes me places I don’t want or need to go. It terrorizes me.

No, I don’t hallucinate. I don’t experience some of the particularly challenging effects of certain brain disorders. But from my own experience, and thanks to that window into Nash’s world that Howard created, I can certainly empathize with those who do experience that. It’s harrowing.

We rely so much on our mind, on our memories, on everything that we’ve stored within and taught our brains. We expect our minds to be infallible, to always tell the truth. We expect them to reflect reality. Because reality is what we think we’ve always lived. But what if our minds aren’t storing memories quite as neatly as we’d thought? What if they are reflecting to us a life in a funhouse mirror?

I guess I’d like to thank my brain for mostly getting it right (I think …). And I’d like to make others aware that some people’s brains just don’t do what they should. That reality is not always real for everyone, that even depression is a state that feels absolutely and terribly real to its sufferer but looks very different on the outside in everyone else’s reality. That sometimes we have to visit someone else’s world so we can help them leave it behind. A bridge must be made between the two realities.

I’m grateful for the people who have taken the time to try to understand my reality, to try to empathize so they can offer the right words or gestures of help. I’m hoping that in writing about my particular mind and where it’s led me, it might help others as they build those bridges.

Backtracking here … some official words about mental illness

I realized the other day that though I started this blog in part to share my experiences with mental illness, I haven’t necessarily given some good definitions of the term or the different kinds of illness that people may experience. As I have written about how I feel and continued to get feedback from friends, I realize that I haven’t made clear enough what exactly “official” mental illnesses do, and how they are different from the regular ups and downs that everyone experiences in normal life. So here goes.

From the National Alliance on Mental Illness comes this information about depression:

Unlike normal emotional experiences of sadness, loss or passing mood states, major depression is persistent and can significantly interfere with an individual’s thoughts, behavior, mood, activity and physical health. …

Depression occurs twice as frequently in women as in men, for reasons that are not fully understood. For more please visit NAMI’s section for Women and Depression. More than one-half of those who experience a single episode of depression will continue to have episodes that occur as frequently as once or even twice a year. Without treatment, the frequency of depressive illness as well as the severity of symptoms tends to increase over time. Left untreated, depression can lead to suicide.

Major depression, also known as clinical depression or unipolar depression, is only one type of depressive disorder. Other depressive disorders include dysthymia (chronic, less severe depression) and bipolar depression (the depressed phase of bipolar disorder). People who have bipolar disorder experience both depression and mania. Mania involves unusually and persistently elevated mood or irritability, elevated self-esteem and excessive energy, thoughts and talking.

Now for a definition of bipolar disorder, also from NAMI:

Bipolar disorder is a chronic illness with recurring episodes of mania and depression that can last from one day to months. This mental illness causes unusual and dramatic shifts in mood, energy and the ability to think clearly. Cycles of high (manic) and low (depressive) moods may follow an irregular pattern that differs from the typical ups and downs experienced by most people. The symptoms of bipolar disorder can have a negative impact on a person’s life. Damaged relationships or a decline in job or school performance are potential effects, but positive outcomes are possible.

Two main features characterize people who live with bipolar disorder: intensity and oscillation (ups and downs). People living with bipolar disorder often experience two intense emotional states. These two states are known as mania and depression. A manic state can be identified by feelings of extreme irritability and/or euphoria, along with several other symptoms during the same week such as agitation, surges of energy, reduced need for sleep, talkativeness, pleasure-seeking and increased risktaking behavior. On the other side, when an individual experiences symptoms of depression they feel extremely sad, hopeless and loss of energy. Not everyone’s symptoms are the same and the severity of mania and depression can vary.

More than 10 million Americans have bipolar disorder. Because of its irregular patterns, bipolar disorder is often hard to diagnose. Although the illness can occur at any point in life, more than one-half of all cases begin between ages 15 and 25. Bipolar disorder affects men and women equally.

As I do believe I have mentioned, it seems apparent (as much as is possible with these complex brain issues) that I have a form of bipolar disorder. One doctor, who has written a fine book and puts information on a website as well, has a great explanation that is quite detailed showing what a broad “spectrum” of symptoms people can experience anywhere between the “unipolar” extreme of clinical depression and the other extreme of “bipolar I,” which includes manic episodes and full delusional mania. For a really detailed explanation, visit Dr. Phelps’ site on this particular topic. In other words, I’m somewhere in the “middle of the spectrum.”

I’d say I’m typically a fairly “normal” person. When I’m feeling pretty normal, I manage to weather ups and downs of life with maybe a little complaining and some irritability. I think most people understand what THAT’s like! But when I’m pushed outside of those “normal” chemical boundaries, then I find it either impossible or much more challenging to weather the regular ups and downs with my regular coping tools. I am on medication that makes it much easier for me to stay in the “normal” frame of mind most of the time. But even so, medication doesn’t put me in that “normal” place 100% of the time. I still end up in an extreme irritable state or depressive place every so often.

One point I’d like to make clear is this: as Dr. Phelps says:

Depression is Not a Moral Weakness.

It Has a Biological Basis. 

He shows there are real proofs to back up this statement.

A view of the hippocampus from Psycheducation.org

The other point to make clear is this: doing the normal things that “normal” people do who are facing some sadness or frustration won’t kick someone who has a brain chemistry problem back into healthy chemistry and normal ways of seeing things. Trying to put a smile on your face or just counting your blessings or looking at all the positives won’t do the trick entirely. I’m not saying they’re not worthwhile, but if someone has gotten into clinical depression, those “tips” won’t fix it.

That’s why I am writing about this topic. I’d like more people to understand what it feels like, what it means, to grapple with a mental illness. If you haven’t grappled with it yourself, it’s hard to grasp what it’s like. So I hope that by writing here, I can bring more understanding to those of you who know me or someone else who does have a chemical/biological issue. I’d like to feel that when I say I’m getting depressed, I’m not just complaining about how life is a little extra hard. I’m actually saying I’m struggling and I need support. I’m asking for help. (And honestly, I don’t do that very often, I think. I like to go out and help other people, but I hate feeling “weak.”) And I think this is what many others in my situation are trying to express as well. I don’t want to be seen as a whiny complainer who needs to just buck up and get a stiff upper lip and understand that life can be hard. I just want to be understood a bit more as someone who has a particular biological problem that sometimes makes life a little more challenging to deal with than usual.

I don’t know how successful I’ll be. I just hope that I can reach a few people. If I do, I suppose that’ll be success. Thanks for trying to learn more and understand!

Too depressed to think of a name for this post

Sometimes the depression end of the mental illness that I get to enjoy hits me like a nice thick fog with claws. I can hear it coming but still can’t quite escape its nasty grip. It grabs on and envelops me, surrounding me in a dark cloud no matter which way I try to turn. But pretty soon I don’t try to turn any way anymore.

This ugly depression erases companionship out of my life and surrounds me with a dark cloud, and, to add insult to injury, it zaps me of the motivation to make a nicer-looking illustration with Photoshop.

It’s sadness and frustration and hopelessness all rolled into one entity. It’s wishing all that feels wrong could just wink out of existence, that somehow I could wave a magic wand and have everything better. On extreme times, it’s wishing I could wink out of existence. The cloud allows me to see out, and I know others can see in just fine, but they can’t tell that anything’s happening. It somehow eerily makes others blind to my inward suffering. I end up feeling alone, isolated, and misunderstood.

I want to scream and cry sometimes. I want to talk it out. But talking doesn’t help because there are no solutions, and the people around me have nothing to say that can change the stark reality of the dreary fog. I want someone to have answers. I so desperately want that. I want someone to fix it. When I’m pushed into the depression it’s usually because circumstances in my life have become a bit too much for me to be able to handle anymore. This time around, it’s all the things I wrote about earlier in the week. It’s not having any time to myself to think or write or just care for my inner self for the whole summer. It’s having huge expenses and a bunch of seemingly nonstop little ones drain my bank account this year and make me nervous about spending any little sum, so I don’t even want to take all of my kids to see a full-price movie for a nice change of pace (even at matinee prices, it would cost almost 40 bucks for the five of us to see “Brave.” I mean, come ON!). It’s this darn broken foot. It’s the frustration of having no control over almost anything in my life lately. So many things have conspired to drain me of my resolve and my strength, and now I am down to the level of near-hopelessness.

Oh, I wish a miracle would happen. I wish my blog and website could be wildly successful. I wish I could get some time and inspiration to write the book I’ve been planning and researching for months now: and to feel that it’s even possible to get it published if I do manage to get that mythical time and inspiration together. I wish that I could find the motivation in myself to lose some weight. But with a broken foot, the exercise part of the equation is more than challenging: the recumbent bike sessions I’ve been doing this week aren’t going to cut it.

I wish that I could feel comfortable enough with more people to really say how I feel, but I don’t trust many people to do so. I’m pretty much afraid of how people will respond. My husband at least has learned over the years to stop saying anything that I could remotely construe as platitudes (because those make me go from 0 to 60 in angry miles almost instantaneously), but now he just says nothing. That’s only a slight improvement on the cliches and pep talks; I just wish he could say something that would really comfort me or encourage me. I wish I could find it in me not to feel at all resentful that he can’t do this for me, because it’s really not his fault. Very few people are very good at dealing with someone who’s laboring under the fog of depression and that utter hopelessness. That’s what’s so frustrating: it isolates so quickly and easily. No one knows how to respond. I know. I get that. But it still makes me feel alone, and angry, and doubly sad. I am deathly afraid of people’s judgment, of their fear, of the possibility that they’ll think I’m weak or that I am just a complainer. (I usually feel fairly strong. That’s the problem: I’m too strong. So even when I feel weak and hopeless, everyone else still thinks I’m fine and just leaves me alone.)

I’m afraid. I’m tired. I’m exhausted. I’m actually just overflowing with “sick-and-tired”-ness. I’m at wit’s end. I’m utterly sick, sick, sick of feeling like this on a somewhat regular basis, of feeling that life has me cornered, that I have no control over my own destiny, that I’m Sisyphus pushing, pushing, pushing on that rock. I’m SICK of looking at that rock.

That’s the thing: I’m not the type of person who expects to have anything handed to me on a silver platter. I don’t think the world owes me a living. It’s the opposite, really. I work hard all the time to take care of myself and my kids and my husband. I work hard in volunteer roles to help other people. My heart goes out to everyone else I hear about who’s in need in any way and I wish I could help. I am always doing something that’s practical in some way. But when I get into this down mode, I wish that all of my efforts would finally bear fruit, that the rock on the hill I constantly am climbing would just sprout some legs already and MOVE, dammit. My arms are tired.

Again, I guess that’s why I’m writing this blog. I want to put into words what I experience, in the small hope that what I say can be of help to someone else out there climbing their own hill, pushing on their own insurmountable, immovable rock. Man, I wish I could just pick up your rock for you and toss it away, let it crumble into a million pieces as it rolls down and hits the valley floor. I wish you could do the same for my rock. And I wish that I could help everyone out there feel more comfortable talking to someone in my position right now, make you feel able to say something encouraging, able to sit it out and not run away cringing. I want to feel less alone. I want others like me to feel less alone.

It might be another thing that’s impossible, but like all the other goals in my life that seem impossible right now, I just have the tiniest hope that they might, might, MIGHT be possible, in some other universe in which I am happy and capable again.

Spirituality and mental illness

As a faithful follower of Christ my entire life, my spirituality and connection to the divine have always meant everything to me. My life would not be what it is without my knowledge of and faith in God, my Heavenly Father, and His Only Begotten Son, Jesus Christ. I have always depended on the great gift of the Comforter that Christ left with his disciples, the Holy Ghost or the Holy Spirit. I’ve been taught since I was young how to understand what the Spirit is trying to communicate to me through his still, small voice. It is explained to people in various ways because it can affect and teach each of us a little differently, so each of us must learn exactly how he sounds to us. A scripture in my faith’s canon says that the Holy Ghost will speak to me in my mind and in my heart, and that really rings true in my experience. I can often just feel ideas popping into my head, and I can feel in my heart a good feeling that confirms they are from a trusted source.

But my challenges with my mental health over the years have thrown wrenches into that beautiful process off and on, in various ways. The depression, irritability and anger I’ve felt have blocked that positive flow of messages from a loving God, leaving me to feel adrift and alone and cut off. I’ve sometimes felt that there are just no answers coming to prayers, and I’ve given up asking. I’ve even gotten angry at the heavens then for leaving me in that isolated state, with no communication coming my way. All of it leads to me feeling that I’m alone and undeserving of God’s love, that for some reason he just isn’t paying attention.

Even medication I’ve taken has caused difficulties of its own. As I wrote in my previous post about my long list of medications over the years, when I tried Abilify for a few months about a year and a half ago, I felt absolutely numb. It was unnerving because I’m usually a bubbly person who often sees the bright side of things and, in terms of faith, relies on (even might take for granted) the wonderful peaceful feeling that comes from turning to prayer and scriptures and other messages of a spiritual nature. I know that when I listen to good music that reminds me of God and Christ or when I read a scripture or an inspirational magazine article, I’ll feel uplifted and recharged. I’ll feel the influence of the Holy Ghost, a marvelous gift. So for the few months I took that medication, I didn’t feel anything, including those spiritual feelings. I didn’t feel bad, but I didn’t feel good. I didn’t feel peaceful or Spirit-filled whenever I did all the things that would normally make me feel that influence. It bothered me a great deal. It was a strange feeling to go to church, where I would normally feel happy and inspired, and just feel … nothing. A black hole where there would normally be gardens in bloom with all colors of gorgeous flowers of faith.

What got me through that time was just the knowledge I had still in my mind about all the experiences I could remember. My brain had stored away the memories of knowing that God had answered my prayers at specific times and that I knew that the Holy Spirit had usually been in my heart. I couldn’t feel it then, but I trusted in my head that it had happened before and would come back to me, no matter what wacky tricks this medication was playing with me. And sure enough, when I got off that medicine and got to mostly myself again, I did feel that peace again. The black hole was gone, filled again with light.

So the wrong medication can play tricks on faith. Depression and other mental illnesses can do their own brand of damage. I’ve been through that emptiness before and am kind of feeling it again, and I’m sure I’ll keep experiencing it throughout this mortal existence. It’s not pleasant, and I’d rather not have to go through this. But my feeling is that this is my cross to bear, so I’m doing the best I can to handle it gracefully. Saying I’m doing my best is the truth, but even then it feels silly to say because “my best” can sometimes not be a whole lot. I feel alone inside of myself and that God isn’t sending me answers or the positive feelings I need. But I know in the part of my brain that’s not “messed up” somehow that he’s still there.

I think what I want most to do here is connect with other people who experience these feelings. I think that faith communities are slowly doing better at directly and publicly addressing matters of mental health in the context of religious belief, and that’s wonderful. But depression and other mental illnesses work hard to isolate their sufferers. Those of us who know in our minds and in our hearts that God is aware of us and loves us but sometimes don’t really “feel” it the way we should because of neurochemical vagaries can talk to each other to buoy each other up not just in our specific trials but in our faith. We’ve been given a great gift to have a Savior and the good news of the gospel he has taught. I believe there are still miracles today. Honestly, though, some days, amid the clouds that create a darkness of despair in my heart and head, I don’t feel a conviction that God will work a miracle in my life. And since I know that isn’t true, deep down, I have to work hard to combat the feeling that is false. A dear, dear friend of mine told me a couple of times that she and her mother were able to talk to a well-known Christian writer of our faith after he gave a talk they attended. She wrote me to remind me what he had told them: “He suffers from depression and told my mom and me that being faithful means that you remember the Lord is with you and mindful of you even when the depression doesn’t let you ‘feel’ it. He is still there!” I just cling to that like a little round life saver thrown to me in an ocean of big waves. Eventually the waves die down, and I’m still clinging on for dear life: alive and well yet again. Still.

Medications and me

Having a mental-health concern (that seems most likely now to be a bipolar disorder) for the past 25 years or so has naturally led to my being on various medications to try to improve my quality of life. I’ve already discussed a bit how it’s been a challenge to figure out exactly what I’ve been up against over the years (just some depression? anxiety? postpartum depression or PMS? bipolar disorder? nothing at all?), so I’ll try to go back and address what kinds of medications my doctors and I have tried to use to help me feel a bit more “normal,” or, more accurately, just better able to cope with the usual stresses and strains of life.

The first I ever took some kind of an antidepressant was toward the end of my LDS mission when I was feeling serious stress. The resident older missionary/retired doctor prescribed me a medication that would supposedly help with that. At this point, I honestly don’t remember what it was he gave me. What I do remember is that I was in pretty bad emotional shape and just going about my regular busy schedule just with a new medication didn’t help me feel any better. Besides, it usually takes a few weeks for those kinds of medications to even start making a difference, and in the meantime, I just kept feeling stressed — and guilty or bad about being stressed while I was supposed to be happy and spiritual and serving God and my fellow beings. It just wasn’t a good recipe for success as a missionary or a happy human being. So I ended up having to leave the mission behind and go home to seek help in a different environment (already talked about how that went).

I was next put on lithium when hospital doctors decided I was bipolar. I took that for a bit less than a year, I think. I felt better as time went on, mostly, but I also went back to college, where I felt more at ease and myself and had my friends around me. I am sure that the medicine must have helped though, looking back, because otherwise I probably still would have been seriously depressed/angry/stressed. But the change of environment did contribute, and after a time, I just felt that 1) the diagnosis of bipolar disorder couldn’t really fit me because I didn’t fit the “classic” signs of the “full-fledged” disorder and 2) lithium is a serious drug to be on: it can potentially damage the liver. I was having my blood tested every few months to make sure my liver was fine, but it was still a real concern. So I went off the lithium. During all this I was seeing a counselor at school, so I didn’t do all this just on my own without any professional support, but I don’t know if I had a psychiatrist on my “team” at that time.

After I married and moved to California with my husband, I know I ended up seeing a psychiatrist regularly, but I cannot remember if she had me on any medication. I know I didn’t go back on lithium. She might have put me on some kind of antidepressant, if anything, but I don’t remember for sure, and I have no idea what it was if I did take something. I do know that the first year of my marriage was very rough for me emotionally, and I prefer not to think about the way I acted. It’s too embarrassing. Luckily, my husband stuck it out with me. I also know that I was on hormonal birth control pills for the first two years of our marriage, and I am convinced that fiddling with the sensitive balance of my hormones was not a good thing for me emotionally.

I know that there were months and years I didn’t take any kind of psychiatric medicine, and there were other months and years that I did. It was always some kind of antidepressant. I took Zoloft and Wellbutrin at a few different times off and on after and between pregnancies. I took them together for a year or so, mainly because Zoloft did take away my sexual response. That’s something that’s a warning when you take that and various other medications, such as Prozac, and it’s definitely true for me. It can seem like a small price to pay, but it’s actually a pretty big sacrifice when it comes to a full intimate life with your spouse, so it bothered me greatly. Taking the Wellbutrin with the Zoloft took that side effect away.

After probably my third pregnancy, my gynecologist prescribed me a new medication, Lexapro. He said it worked well and had no significant (definitely not sexual) known side effects. I was eager to sign up. The morning after I first started taking it, I got out of bed in the morning to use the bathroom and then ended up passing out on my way back to bed. I was so scared about the weird feeling I had during that few moments that I told my husband to call 911. The paramedics came out and pronounced me fine. They said I’d most likely rubbed the back of my neck or something and had some kind of vagal episode. OK. Fine. Unfortunately, over the next 5 or 6 days that I took the Lexapro, I still felt weirdly faint and out-of-body-ish, and I figured the only thing that had changed in my life was that new medication. I visited with my general doctor, who told me that was ridiculous. But I decided it was the cause, and I stopped that Lexapro. I instantly felt better, well, fainting-wise. (The lesson here: even if your doctor says you’re being ridiculous, you still should trust your instincts.) So I went back to Zoloft or something similar, I think.

I started going to a psychiatrist again, which I hadn’t done for quite some time, just getting antidepressants from my gynecologists or general physicians, although I had still gone to see counselors for talk therapy more regularly. The psychiatrist I saw at that point, probably in 2007 or so, put me on Effexor eventually, which worked well for me for a while. He did suggest I might be experiencing bipolar disorder and might benefit not from lithium, but Lamictal (lamotrigine). He even gave me a sample pack. Even though I did consider that option, I told him that since I was feeling pretty good taking the Effexor, it seemed silly to stop taking something that was working just to try something else. He thought that was reasonable and kept me on the Effexor.

Then in 2008, my family and I moved to California from a long stint in Alabama, and life became unbelievably stressful. I’d also been taking the Effexor for probably a year or maybe a little less. At any rate, I’d probably only done well on an antidepressant for a year or so at any time I’d taken one, either because after a while, my life had settled down and I’d gone off a medication and been fine, or the medication had seemed to stop working. In this case, I just kept taking the Effexor, but my new general physician upped my dose. Shortly before another momentous, life-changing event for me, the death of my beloved dad, I started trolling the Internet and found the site I’ve mentioned already by Dr. Jim Phelps, which made me start to seriously consider the possibility that I really did have a bipolar disorder. But this psychiatrist was making the point that there was a wide spectrum of bipolar disorders, not just the “biggie” in which people stay up without sleep for a few days at a time, go on wild shopping sprees and spend tons of money, and do otherwise really foolish things they wouldn’t otherwise do. So I found a psychiatrist in my new town who was on my insurance list and made an appointment. He put me on Lamictal, which my previous physician had suggested a couple of years before. It did seem to slowly make a difference, and I was happy to be off the Effexor, although it did take a solid two or more months to very slowly wean off of that very addictive medication. (If I didn’t get a dose, I’d start feeling kind of headachy and light-headed, in a distinctively Effexor-less way.)

So I think the Lamictal gave me some relief and some hope that I was on the right track, but a couple of months into that, my dad died and sent me spinning. My psychiatrist asked me at the first appointment after Dad’s death (merely two or three weeks afterward, mind you), “So, how are you feeling?” Uh. BAD. My dad died. I’m miserable. Hard to say how the medication is working. I’d feel rotten no matter what. And that’s how it went.

A few months after that, I mentioned to some people in my church congregation that I was struggling with mental illness, and a few recommended I try a different option, a natural formulation called EMPower that was sold by a company called Truehope. The company says that the formulation contains micronutrients that are found to correct the imbalances found in those with bipolar disorder and other mental issues. I have always felt that ideally, it would be nicest to treat the actual cause of a problem rather than just the symptoms, if at all possible. This sounded like a very reasonable option, and Truehope has actually been doing scientific studies showing the benefits of EMPower.

I felt that I needed to at least give this option a shot. If I didn’t, I would never know if it could have helped me or not. So I went in to my psychiatrist, who naturally told me he didn’t agree with my decision and that he couldn’t continue to see me if I went off my prescription and took EMPower instead. I knew he’d say that, and I was ready to say, “OK. I won’t be back.” He said he knew I’d be back in a few months in even worse condition.

I tried the supplement, which is actually pretty expensive (probably about $100 a month, and not covered by insurance, of course), for about six months. I felt at first it really did help, but after a few months, I was just not feeling good enough. I tried a few adjustments and options after some phone calls with the company’s support techs, but I finally had to make the decision to end my own personal “drug trial.” I am sure that the supplement truly does help lots of people, but as with anything, nothing helps everyone. I did struggle, however, with what to do next. I firmly did not want to go back to my previous psychiatrist. He was too abrasive, and I felt I couldn’t work comfortably with him to find the best options to treat me. I finally decided to go see a nurse practitioner working in psychiatry 45 minutes away from my town because my therapist had heard good things about her from several other clients. I felt that it was going to be best for my mental health process to work with a psychiatrist who I felt comfortable with, that we were really a team, that she would be supportive. So I made the appointment. This new person, who I still see almost 2 years later, turned out to be a really good fit personality-wise, which I think makes a big difference in getting the best care possible. The only drawback is that my insurance doesn’t cover her, so I have had to pay entirely out of pocket. Luckily, I have had the spare funds to be able to pay for the visits, and it has been a good choice for me.

I’ll just call my nurse practitioner by her first name for ease of writing. Susan really went into a lot of detail with me, talking to me about the options and what she thought might work to help me, even explaining why she felt that way. I personally have really liked her approach. I like to feel that we’re on the same page, and knowing her reasoning helps me to feel more confident that is happening. We tried probably four or five different medications over the course of probably four to six months, during which time I’d go back every month to see her and check in. We tried Abilify, Prozac, and maybe Celexa. I can’t remember exactly. I did notice Prozac didn’t make me feel any better, and it just made me feel completely dead sexually, which was super-frustrating for me. So that was a no-go. I also know the Abilify didn’t do it on its own, and it actually made me feel, rather than “more normal” or “more like myself,” just kind of numb emotionally. I wasn’t stressed, kind of, but I was just dead. I didn’t feel anything. I felt like a zombie. I absolutely did not like that. She ended up adding in Cymbalta, which felt pretty helpful. Eventually, we took out the Abilify to see if that would help me feel less numb. And it did work. The Cymbalta, at the time, on its own, was a good fit for me. I’ve now been on that for perhaps 18 months.

Unfortunately, I’m afraid that now we’re getting to a point we need to tweak again. I’ve been on just antidepressants before, and I’ve either just gone off them or they’ve stopped working, and I fear this is happening now. I’m just feeling unhinged. The stresses and huge demands on my time are taking a huge toll on me, and I’m not proving up to the challenge of dealing with them in an appropriate manner. I’m coming up in a few weeks on another check-in with Susan, and I think this time we’ll have to address now how to change my dose or try something else. It’s been nice, though, for the past year, feeling pretty good and “myself.” Descending back into my “crash” mode is a scary and upsetting thing, for me and my family, and it’s nerve-wracking for me to ponder how much trial-and-error it’s going to take to get me back to happy. Will it take a couple different medications again and weird feelings of numbness or just not-effectiveness (so I’ll just feel unable to cope for a few more months? Yikes!)? My main fear is looking ahead at a few months of not being myself, far from it, especially with summer months coming on and my kids being out of school and all the stresses that places on me every summer. It scares me.

So that’s where I am, medication-wise. I’ve been a bit of a guinea pig for the past 20 years. It’s difficult because treating any kind of illness can be tricky and require some finesse. The basic stuff is kind of straightforward (infection? take an antibiotic; cold? take some antihistamines and Sudafed and wait it out), but other health issues take some trial and error. Then when it’s mental health, which is still a kind of slippery creature in the early 21st century, and every person’s needs and body chemistry is unique, it’s a science that’s more art than anything else. Being the doctor is probably a challenge, but being the patient is truly difficult. Being that guinea pig, the one on different kinds of medicines, is tricky and frustrating as all get-out. I’ve said for ages I wish there were a control group for me. But there isn’t. Good science requires a control group and an experimental group, and in this case, giving just me a medication and seeing what happens isn’t truly good science. And the onus is still on me as the patient to make the judgment calls, to figure out what’s changed, what to tell my health-care provider, about what might be significant. Do I feel better taking Lamictal even though my dad just died? Can I possibly separate out the effects of that from my normal stress reactions? Can I say I feel better on something even though a bunch of stuff has been happening in my life? If I could put myself in a quiet room without any interference from outside sources, I could judge better. But that’s never possible. (And if I could be by myself in a quiet place — resort, maybe? that would be amazing — I may very well be able to get to feeling better without the medication. Maybe. At least I wouldn’t be bothering anyone else.)

This post is incredibly long; perhaps I should have separated it into a few parts. But it’s the best answer to those who would like to know what my experience is with medications. I hope it might be of some use to those of you who struggle with similar problems and need to figure out how to look at your own situations with more clarity. Perhaps it will just make some of you more sympathetic with those in your lives who have challenges similar to mine. Or maybe those who know me but don’t know all these details about me will feel more empathetic with me. Either way, I hope this is of use to someone out there. This is an ongoing story, so I will need to update as the next few months come along and I visit my nurse again.

A tribute to a one-in-a-million man

Since he turned 45 yesterday, I decided today would be a good day to recognize the superhuman support and love of my husband, Marce. I met him when he was 25, and in a way it doesn’t seem possible we’re in our 40s now, that nearly 20 years have gone by. I’m quite sure when he fell in love with me and decided to propose he had no idea what his married life would have in store for him.

We did have some discussion while we were dating about my mental health. I had returned from my mission, gone through the heartbreak I did with my longtime friend, and been started on lithium after a diagnosis of bipolar disorder. One evening we took a drive to visit my mission president, a man I love a lot and greatly admire, and who was sensitive to my needs. He and his wife sat and chatted with me and Marce; we had only been dating about two weeks at that point, and I didn’t really expect it to get serious. My president asked about how I was doing emotionally, and I told him so far, so good. His dear wife whispered to me, “He is a good young man. Hold on to him!” (She was more right than I could possibly have known that evening.) On the drive back to school, Marce asked me, “What did he mean about taking your medicine?” That gave me the opening to just tell him everything about what I’d experienced and where I was at that point. He listened quietly as he drove, held my hand, and seemed very reassuring and nonjudgmental, which meant a lot to me.

Sometime in the few months after that, I decided to stop taking the lithium because I just didn’t feel I had bipolar (I just didn’t fit the symptoms of the “bipolar I” or the typical disorder, as I think I’ve written about already). The medication could have dangerous side effects, and I needed to have regular blood tests to make sure it wasn’t damaging my liver. I felt since I wasn’t sure about the diagnosis taking a possibly harmful medication didn’t seem like a good idea. Unfortunately, around that same time I got engaged, finished college, and started my new life, and got so busy with a new full-time job and a marriage and new place to live and everything else that I neglected to consider my mental health. If I remember correctly, I didn’t do anything about it immediately (though I know I did find a psychiatrist sometime in that next year). I also started taking birth control medicine, which is chock full of hormones, which I have also learned was probably not a great addition to the cocktail of my personal chemical makeup. Again, unfortunately, I didn’t know any of this at the time.

My sweet love on our wedding day.

What my dear groom experienced in the first year of our marriage was a number of occasions of me flying off the handle at nothing. I remember one trip on a day off to an amusement park, where I went ballistic over something someone near us did and shouted at them. I don’t remember the details, and honestly, just thinking about the idea of it anymore and writing it down mortifies me. But it’s what happened. I was a mess. On that occasion and others, Marce would just quietly try to divert my attention and take me away physically. He rarely made any comments or judgments.

The two of us have very different temperaments and backgrounds. My family was very open and didn’t hold back our opinions. We argued and yelled and were loud. His family was a strict Asian family, and the children did not talk back. There was no argument between children and parents, and yelling wasn’t tolerated. On top of those differences, I had a background in speech and some debate and a need to win. Marce played basketball and never debated. I’m sure it mattered to him if he won basketball games, but he just wasn’t (isn’t) a competitive type. Put that together, and you have no arguments, sure, because it takes two to argue. But I’ve certainly hankered for it over the years. If he had been the arguing type, we’d have had some doozies. As it was, I’ve yelled and screamed and done wacky things, and he’s listened in silence with a nearly emotionless face.

I’m not writing any of this because I’m proud of it. Very much the opposite; I’m embarrassed as all get-out. In many ways, my yelling and anger doesn’t fit with what I consider almost my “real” personality. But it’s happened, and it’s impossible to say that it’s __ percent my hormones/brain chemistry and __ percent my personality/upbringing/etc. I’ve already written about how it’s not possible to separate my “true” personality from what’s been caused by my mental disorder. I just am who I am; what I’ve done and experienced makes me who I am now. I hope that all of my flaws (chemical or not) have at least helped to turn me into a better person over the years, rather than cement me into place as a meanie.

It could be accurate to say that Marce may have needed to be more assertive or actually discuss issues with me more rather than just be silent. But that’s an issue for his blog, if he were ever to write one. What’s important and relevant is that over the course of being together for 19 years, he has never yelled at me; he has never left. He has always loved me and been supportive. I don’t think he’s judged me harshly, despite my giving him good reason to do so. He has done that from the very beginning, up until now, when we can at least put some good labels to what we experience together. Because at this point, it’s not just MY mental health issue; it’s OURS. (Although I have said at times when I’ve had the worst moments that he’s lucky he can at least go to work or somewhere else and get away from me for a while, whereas I can’t get away from myself and what’s happening in my head.) We are in this together; we’re a team. What’s his problems are mine and vice versa; what are his strengths could also be mine, and vice versa. I’ve known from fairly early in our dating days that I just felt comfortable, myself, with him, that I didn’t have to pretend to be something or someone I wasn’t. I was at ease; I felt loved. I’ve also known that we complement each other perfectly. We have truly made a great team.

Many other men may have bolted long ago from what I’ve put my husband through. But he is not other men. Sure, he has weaknesses, but he is an unconditionally loving husband who is dedicated to the institution of marriage and to me, personally. He and I believe that our marriage can last forever, and we’re working on it so we can be happy together for eternity. I now have confidence that is truly possible because I have 18 1/2 years of knowing for sure that my husband is committed to that. I am very blessed. His support has made all the difference in what have been some really challenging times. So, happy birthday, my love. I hope that my strengths and commitment to you have shown you how much I love you and appreciate all you’ve been to me.