Down syndrome PLUS other challenges, like mental health

I’ve already blogged about having an adult daughter with Down syndrome and how that’s so much different from having a younger child with DS. It’s tougher in many ways: the gap between that child and your other non-DS kids, in addition to the gap between that child and most everyone else, is so much wider than it was when they were little. You’re used to the different life, sure, but there are still plenty of times you’re reminded how things would be if that child didn’t have DS. As your other children become adults or older teens, that gap is starker.

What also makes life more … eh, interesting … is when that child has other challenges on top of all that DS does. We as a family have been so blessed that our daughter, unlike about half of people with DS, never had heart problems. She didn’t require surgery. I have always been appreciative of that. For us, however, what’s been tough has been my daughter’s emotional health challenges. I’ve blogged lots about my own mental health, so look at all that for what I’ve experienced personally. Marissa has exhibited a lot of mood swings and meltdowns for probably about five years, and those have gotten so much more frequent and intense the past six months or year. Over a few years, the doctor and I have tried Prozac on her to see if that could help her feel a little less out of control, but it hasn’t helped. Now, however, with her just having such a hard time, I’ve been trying to figure out just what we can do from here.

Here’s the thing: I’ve already written about how difficult it can be to find a good mental health provider, particularly a medical doctor — psychiatrist — who specializes in these things. It’s hard for EVERYONE who finds themselves in need of a psychiatrist. There simply aren’t enough to address the need. That’s particularly the case in smaller communities or other underserved populations. And it’s a tragedy.

Add that to the difficulty of finding someone who has the extra skill to work well with someone with a learning disability, for whom it is much more difficult to understand and express the nuances of things they’re feeling, and the challenge can be overwhelming.

I’ve felt overwhelmed by various emotions: frustration, sadness, some anger, helplessness, inadequacy … the list goes on. I feel bad for my daughter because I know from personal experience (years of it!) how it is to feel so taken over by your emotions. I also know it must be particularly confusing and scary and sad for her. But then when it just goes on and on, day after day, and the things I try to do just don’t seem to help much, I feel frustrated and angry and depleted and just ready for it to STOP. For at least a little while.

I took her back to her regular physician a few weeks ago, in desperation, hoping that he and I might be able to come up with something to help. Just a start. I told him what I’ve struggled with personally and what medications have now helped me for the past two or three years. I told him how few resources there are. I told him, “I know this isn’t really in your wheelhouse, but…” Luckily, he is a good and kind man who is happy to listen and consider ideas and research them, and I trust him to do what he can. He said he’d look into some things and get back to me.

Meanwhile, I had my own check-in with my psychiatrist (well, she’s technically a nurse practitioner who specializes in psychiatry and she is FANTASTIC), who is at a clinic an hour away from here (and that my insurance doesn’t cover, so I pay out of pocket for each visit: $100 each time I have a check-in). I told her about my daughter and asked for some ideas. I felt it was the best option for M to go to this place, since I know they’re good and they specialize in this. But I was thinking they weren’t taking new patients, which wouldn’t help me at all. Luckily, I had taken her there maybe five years ago, when she wasn’t doing too badly, so I was able to get her in again. She has an appointment in two weeks.

Meanwhile, she is having blow-ups and meltdowns multiple times a day, sometimes, and it’s a strain on me and especially on her youngest sister. I’m just holding on until that appointment. And even then, these things take time. It’s going to be more of a challenge to help her than to just be the patient myself (that is tricky enough, believe me).

I am aware often of the multiple challenges people face. Children and adults with DS, like anyone else, have various needs and overlapping issues. It can just make it that much harder to deal with each of those things. I have such sympathy for the individuals with DS who have these needs, and I definitely understand the needs and feelings of their parents and families. Each of us is going through a unique mix of trials and challenges, and many of us go through those without others realizing. My daughter’s DS is obvious to others. What is not obvious is all the other things we are dealing with. My girl is such a sweetie and so loving and outgoing and friendly and happy, and that’s what most people see. They don’t witness the meltdowns and the moods. That’s reserved just for me and mine (yay! ha). Today, I share this to help others see what happens behind our doors some days, and so others in a similar situation as we are can perhaps find something to latch onto and know that I get it. I feel ya.

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She’s high and she’s low. Most people see this. I love this face. I love her all the time. But all the complexities and challenges can be exhausting.

How my nest is different thanks to DS

nestI read this blog post thanks to a friend sharing it on Facebook, and I had too many ideas to share in a comment, so I’m writing my own post with my takes on the idea. Liane Kupferberg Carter wrote “For Some Moms, the Nest May Never Be Empty.

I wrote last year that my second daughter, who has Down syndrome, turned 18, and it was a different experience than when my oldest daughter did. She’s now 19, and she completed high school this June. That change and others of this year have been more impactful than her just turning 18. This year, she’s in a new class setting that’s at our local community college, but that’s still run by our county school district, as was her high school class. She is still learning life skills, but the class is working even more toward the students being able to move about in society on their own and work as much in ways they are able to and will enjoy. She carries around a small purse with a little money and her state I.D. card. She got a bus pass and her own library card (which I just hadn’t done with her yet myself). She’s talking more about socializing. Or maybe I’m picking up on it more. With her having “graduated” from high school, having her be able to be “out there” in the world in ways that work for her seems more imminent. I’m thinking more about finding ways for her to get out there and socialize with her peers. I’m thinking about the possibilities of her immediate and slightly more distant future, whereas before I was just putting that on the back burner in my mind, “putting a pin in it,” because there’s just so much else for me to think about RIGHT NOW (I mean, having three kids still at home, plus a “grown” daughter and now a grandson — yay!!! — is just a ton of work anyway. A woman can only do so much).

My husband has kind of set in his head that she will just live with us forever, so we will never be empty-nesters, just as Carter wrote. I’ve always had in my head that she certainly could move out to different kinds of settings that she may enjoy more than just staying with her parents, at least off and on. I still think that. She’s pretty social and capable.

At the same time, my nest continues to feel different. My oldest moved out two years ago when she got married, which really changed the dynamics in our home. We have four daughters, and it’s astounding how the dynamics shifted when just the oldest one moved out. For one, I really mourned when that oldest got married. It took me months to come to grips with it. I missed her so much, and having her be married and “belong” to someone else made it different than just going off to college. For another thing, I just didn’t like the way the remaining three interacted, compared with how it was when my oldest was still at home. They still bicker more than when she was here (as one example), and it’s been 2-plus years.

I’m acutely aware of the differences between me and my friends, especially the ones I follow on social media. They have similar age gaps in their families, at least at the beginning (there’s two years between the first two, but then a four-year gap after I had Marissa — I just wasn’t ready for another infant too soon because she still felt like an infant and toddler for a longer time than the first had — and then a five-year gap between the last two because it took three long years to get our adopted girl), and while I see their oldest out and doing various fun “new-adult” things like my first, then I see their second and third children out doing those things, too, and I feel like my situation has stalled. Sure, it’s comparing, and you know what they say about that, but it’s just always there. I see it. I feel it. I feel “other.”

I still have plenty of parenting time in me: I have a sophomore and a fifth-grader. From experience, I know the remaining time at home is going to fly with my sophomore, who really keeps me hopping. Then she’ll fly on out of the nest on to all kinds of great things. She’s an achiever, like I was. And the 10-year-old, well, 8 years still seems like a long time.

So the nest is still full-ish. But I have enough taste of the birds starting to fly out that I can feel those changes. I can feel the things that aren’t changing. I also worry a bit about things I’m not doing, which certainly isn’t different from any parent, no matter their child’s situation. I have just recently watched one episode of “Born This Way,” which follows some young-adult people with Down syndrome, and it stirred up all kinds of feelings of sadness, guilt, wistfulness, worry, etc. I was happy for the ways those young adults are just being “normal” young people. I felt guilt for not doing more to get my daughter “out there” more like that. In a way, I don’t want to have that to compare my situation to, because it’s almost harder emotionally for me to compare with people who are essentially more in my situation than others I know. It sets a standard I don’t know I can meet. I mean, I’m sure it’s meant in part to give me hope for a good life for my daughter, but my brain doesn’t work that way. I compare negatively.

I certainly know I’m not ready to deal more with my daughter’s dating future (which is probably a whole other post on its own). It’s hard enough to deal with certain simpler issues with her when she acts like an 8-year-old in many respects, let alone the complex world of dating.

I guess that’s where I put a pin in a few items still, work on some that I’d pinned earlier, and know that I can do this, one or two topics and needs at a time. And whether she eventually flies out of the nest permanently or occasionally, we’ll be (mostly) ready for it when we amble up to that bridge that needs crossing.

 

New territory: Having an adult child with Down syndrome

Over 18 years ago, I found out through a blood test and amniocentesis that my second child had Down syndrome. Back then, there wasn’t much in the way of the Web, so I went to the library. I found one book that talked a bit about children with DS and had a few pictures that weren’t really flattering. I didn’t feel I had much to turn to in the way of sweet stories, adorable photos of adorable kids and babies, support systems, etc.

That did start changing when I had her. I found out about Band of Angels, which at the time was creating gorgeous calendars featuring models with DS shot in lovely settings. We were officially entered into “early intervention” programs where we lived and she got help with physical and occupational and speech therapy and so on. I got involved in a local Arc.

But for so long, my daughter was little, a child. She was cute, she was the poster girl for the UCP Center’s yearly fundraising campaign. She was a doll, just lovable and outgoing and friendly.

And it’s kinda funny, because for a while now, there’s been more online awareness of younger children with Down syndrome. There are plenty of groups and cute photos that circle social media. But not a whole lot in the way of adults getting attention. (But now there is the A&E reality show “Born This Way,” that follows young adults with DS living their lives, so that is cool progress.)

In short, it was relatively “easy” to have a child with DS. It wasn’t a whole lot different than raising my other children.

She had a great time this spring playing in a local softball league for people with disabilities. SO cool.
She had a great time this spring playing in a local softball league for people with disabilities. SO cool.

What started a change was her adolescence. She hit 14 and started puberty. She got a period. She learned about wearing pads (and not to talk about them all the time in public). She became a teenager. The moodiness that’s hard to talk through, as I have done with my other teen girls; the periods; the observations about cute boys or about seeing her sister or friends at school dating or holding hands or kissing … it wasn’t something I was really prepared for. It wasn’t so “cute” a time as when the DS kids are younger and still sporting the adorableness of babies and preschoolers. So there’s not as many pictures, not as many inspirational stories circulating Facebook and the like. For me, my new situation parenting a DS teen was kind of uncharted territory.

And that’s become even more so now that she is 18. She’s legally an adult today. But unlike my older adult daughter, she doesn’t have a driver’s license, can’t help out driving herself and younger sisters around; doesn’t run errands for me; doesn’t babysit. She needs a bit of babysitting/supervision herself still. She’s emotionally and mentally really more like a 7- or 8-year-old in a lot of respects. But she’s bigger and developed and has a menstrual cycle. It’s harder to discipline her. She’s moody and just mumbles loudly or trounces off to her room and slams the door if I try to tell her, gently and kindly, that she should be nicer in how she speaks to her 9-year-old sister, for instance. I can’t really talk her through things.

In short, it’s not so cute anymore. It’s NOT not that different from parenting my other children, like when she was little. Don’t get me wrong: she is bright in many ways and really helpful and can be incredibly sweet. She’s pretty great. But it’s now really evident that she’s different. She has Down syndrome, and it’s obvious.

We’re getting her a state official I.D., not a driver’s license. We’re talking about some programs that she can do post-high school, next year. We’re starting to think more about what kinds of things she may be good at, what she will enjoy, for work-type opportunities, for socializing, for living arrangements. This is a whole new ballgame.

That story a parent wrote a few decades ago about embracing a new reality called “Welcome to Holland” seems to be hitting me now. The writer compared having a child with a disability as planning (during a pregnancy) on going on a “fabulous trip to Italy.” But then the new reality hits, and you’re going to Holland instead. In the past 18 years, especially, I’d say, the first 12 or 14, I was kind of going to Holland with Marissa, but I still had plenty of experience in Italy, with my other three children, for sure. And then with Marissa, I was kind of in Little Italy in Holland. Now, though, that feeling of visiting Italy at least through restaurants or guidebooks or seeing pictures on the Internet has dropped away. It’s hit me that I’m really in Holland.

It’s OK, just as the story goes. But I didn’t see it coming. Or I kind of did but now it’s hitting me. And I’m going through another adjustment period. And there’s not a lot in the way of cool or cutesy memes or stories or photos going around online — but, like I said, there is “Born This Way,” so that’s a good step in the right direction. Maybe I’ll start seeing more of that. And my sharing my experiences will prompt others to share. Or I’ll just start finding others’ stories more, seeing them amongst all the other stuff that’s online.

So here I am, my cruise ship permanently docked in Holland, at least with one of my children. I’ve got ships in Italy with the other three. It can be jarring a lot of the time to switch between the two countries. But I’ll make it work, and it’s a new adventure.

How much of life do we ‘sign up for’?

It’s difficult for me as a mother, period, and as a fellow mother of a daughter with Down syndrome, to read the words of Hallie Levine, who says she would have aborted her daughter during her pregnancy if she’d had the diagnosis then. Sure, she says now she’s grateful she didn’t, but she asserts she should have been able to and that others should be able to do so as well. Aside from all my other feelings on the subject (and I have many), I’m going to focus on one phrase she used: “I never signed up for this.”

Having heard a man whose wife is now paralyzed from the midsection down say the same thing in regards to being married, and other people in tough situations make the same remark, it strikes me that we live in a society where we really feel we should only face things we’ve agreed to. We’re so focused on freedom of choice, on contracts, on knowing so much about outcomes and possibilities, that we feel we can and do control our lives.

Assuming some equal opportunity (and that’s a topic for another blog post as well), let’s say we all get to choose the level of education we attain and what we study. We get to choose our line of work. We choose our marriage partner, if we marry. We choose how many children we have and how to raise them. We plan for and choose when to retire, and what to do in retirement.

We “sign up for” these things. We sign on the dotted line for many of them. Life is a series of contracts that we choose to accept or deny. And we’ve written escape clauses into the contracts. Many of us spend years choosing whom to marry, and when to do it, but even a few years into the contractual relationship, divorce is readily available to let us out of that signup. Pregnancy? We can avert it with birth control, we can terminate with abortion.

But how about we step back a moment and consider that life is not really within our control. It’s not just one contract after another. And when events in our era are finalized in this manner, stamped with a legal seal of approval, they often get boiled down to simple terms that don’t fully encapsulate the “real deal.”

Life is messy. It’s complicated. It involves all kinds of unpleasant surprises that we tend to think of as happening to “other people.” Even aging and death seem distant to us today, that somehow they’ll never happen to us. But they do. And the older we get, the more we experience, the more we realize that death will happen. Aging will happen. We’ll get sick, we’ll be limited in some way physically. These same things will happen to our spouses, and eventually our children.

Levine says she wouldn’t want to see someone else “forced into” her situation. But simply being alive forces us into all kinds of situations we’d rather ignore or pretend don’t exist or won’t happen to us. Choosing to get married leads us down a path in which we may very well have to care for a spouse who becomes disabled physically or loses his memory, among a host of other scary possibilities. Choosing to have children leads us down a path in which we may care for a child with a physical or intellectual disability or mental illness or any number of possibilities we never envisioned for ourselves. But those paths are real.

I don’t deny that it can be overwhelming at times to parent a child with Down syndrome. That’s just one of those “scary possibilities” I know firsthand about. I grieved for a few days when I received the results of my amniocentesis. It was an experience I didn’t count on. It was a loss, the loss of a “typical” child-rearing experience I had counted on. But life presented me this path, and I’m on it.

I don’t have any idea what other challenges lie ahead of me on life’s path, as a person, as a wife, as a mother. I won’t deny that I’ll grieve, be scared, be overwhelmed, be frustrated … any number of normal reactions. And I definitely won’t “sign up for” any of these challenges. But that’s life. And we’re all in it together. We can’t (and, yes, while many disagree with me, I heartily say “shouldn’t” when it comes to aborting in most cases) prevent these difficulties. We can learn from them, do our best to deal with them, and support each other through them. I hate to see others go through tough times, but I’ll eagerly “sign up” to lend a shoulder to cry on, a hand to help.

I still believe in ‘traditional’ marriage

I believe in what’s now referred to as “traditional” marriage. I strongly believe it should be between a man and a woman. And I believe this because of my faith.

So I am not celebrating today’s Supreme Court ruling.

I realize that many are, and that this is now the law of the land. I respect others’ choices and strong beliefs that go opposite of my own, and I DO NOT HATE them. I have never been unkind to friends and acquaintances or strangers who are homosexual. I do not believe in hate speech. But I do believe I have a right to disagree, respectfully, and not have my personal belief labeled “bigotry” or “hate speech.” I also feel it is now important for me to explain briefly why I believe the way I do.

Contrary to what some may expect, I am not a “traditionalist.” I don’t believe AT ALL that anything should continue just because “that’s the way it’s always been.” Many, many negative behaviors, beliefs, practices and laws have been perpetuated because too many people did not have the courage to change them to what would be better, or just plain right.

I do believe that if something is right, it should be supported. I could make all the arguments about why I believe that changing the definition of marriage is not going to be good for society or for children. But those have been made in many places and I do not need (or have space) to repeat them here. Besides, those are arguments, and there are many arguments that go the opposite way. We could all (and certainly have been) go around in circles, debating and arguing and ramping up the anger. I do not like that idea at all.

I support marriage between a man and a woman because I believe what my church teaches. And here’s where it gets radical: my church doesn’t teach this doctrine because of some references in the Bible or some somewhat vague ideas on what Jesus may have taught about the practice of homosexuality. My church teaches this doctrine because we believe that revelation happens today. I read and learn from the Bible. But The Church of Jesus Christ of Latter-day Saints was founded two centuries ago on a foundation of being the restored church that Jesus founded two millennia ago. That means we have a president who is a prophet, a designation that means all that has meant historically. He has two “assistants,” called counselors, and there is a group of 12 apostles, just as in ancient days. And these people aren’t just “called” apostles and prophets. They truly receive inspiration, revelation, PROPHECY from Jesus Christ. It’s His church, and it’s led by Him. He directs it on the Earth through his mortal leaders.

The LDS Church has made very clear through these people we call prophets and apostles that the doctrine of marriage is an eternal one, that marriage between a man and a woman is not only made for us here in this period of mortal life, but is meant to continue after this life: forever.

The church has also stood behind and continued to promote strongly the document revealed and agreed upon by all these apostles 20 years ago called the Proclamation on the Family. We believe it is an inspired and vital document that proclaims basic truths about the family, about marriage, parents and children, that are now being changed and disputed by others.

My 40-plus years of life have shown me time and again that faith is a crucial part of life. It’s one of the big reasons we are here in this existence of mortality. We lived before and we will live after. Here, now, we are meant to learn faith, to believe in a God we cannot see right now and to cultivate taking things on faith that might not always “make sense.” I have had my faith affirmed time and again, and I hold it dear. It guides my life and has blessed me a great deal. I KNOW things to be true because of my faith.

I know that prophets speak today and have affirmed the importance of marriage in the “traditional” sense. I recognize and respect the beliefs of others that contrast so much with my own; I also recognize that some others, friends I admire greatly, who are even members of my church, have differing opinions on this issue. I have and will continue to hope we can simply agree to disagree on this topic and continue to enjoy our friendships for all the fun reasons we are friends.

I simply ask that my strong beliefs on this topic can be respected and that I will not be called a bigot. I do not know the “whys” of many, many things. I like to search out answers, but sometimes answers cannot be found in this life, or for a long time. So far, I do not know “why” some experience same-sex attraction. Science still has no answers for that. I do know that sometimes we must act on faith, and I ask for respect for my faith. I will respect the law and others who disagree with me. But we can certainly all be civil; we can be kind; we can get along.

Just don’t say ‘if you just…’

Ever had a problem; been frustrated, angry or a little depressed; felt stuck? Ever had someone tell you, “Well, if you just did this ______, you’d be fine?”

I’ve had people say that to me. And it shuts me up. It doesn’t help me, but it stops me from talking to those people. I don’t know if I’ve ever said it to someone else; I hope I haven’t. I know I’ve thought it. But at least for a long while now, I’ve known better than to say it out loud. And I’ve tried to remind myself of the truth:

Any one of us can have problems and challenges that, compared with someone else, somewhere, can look tiny, easily surmountable. Sometimes it’s helpful to realize others have it worse. If we look at our lives with appreciation and gratitude for the good things we have, it can help. But usually, trying to tell ourselves logically (or have someone else “helpfully” do so) that our problems shouldn’t be such a big deal does squat for our feelings.

Here’s why: we are allowed to feel how we feel. We’re meant to feel. We’re meant to have feelings in response to life situations, whether they’re kind of everyday things or unusual things. We’re meant to have all kinds of feelings all over the spectrum of emotion. And those feelings include “bad” ones. We’re meant to just feel those feelings. And what usually happens is once we allow ourselves to feel them, really feel them, we can move on to other feelings about other life events.

The problem is when we stunt that natural process by telling ourselves we shouldn’t be feeling “so bad” or by having someone else tell us so. It stops us from moving through the feelings, talking or thinking through the ideas and emotions.

Same applies to things we could or should be doing or doing better, not just what we’re feeling. Likely we’re comparing something we’re just naturally not so good at with something that really is easy for someone else, so we feel inadequate. Or we could compare something that’s easy for us with something someone else finds more challenging. And we say those dreaded words: “Just do ___.”

We all not only have a complex mix of weaknesses, strengths, natural talents and acquired skills, but we are at different stages in life. Something that was hard for us 20 years ago might be much easier now. Ditto for those around us. And something that was easy for us a year ago might be harder now because our circumstances are more challenging in other areas or we’re struggling with events that are zapping our emotional strength.

For me, I’m finding that I am feeling a general sadness in one layer of myself/my life because my oldest daughter got married a few weeks ago and moved out. But I hate to say anything to anyone because it just “seems silly.” She lives only an hour’s drive away and we can talk and visit. Every other parent my age has already had children go off to college or serve as missionaries for our church, during which time they’re gone for a solid 18 or 24 months and only generally in contact via email or letter once a week. So I feel ridiculous saying out loud that I’m grieving a little over the “loss” in a way of my first, amazing child. But it does make me sad she’s not around all the time anymore. I miss the daily interaction and talks and jokes and hugs and smiles and everything that was our relationship while I was raising her. Things are changing, have changed. It’s real to me. But I don’t want to say anything to anyone else for fear of being compared, of essentially having my feelings belittled because their “loss” is bigger. Their child is across the country or across the world … or something “bigger.”

I also find that I feel down on myself because I have generally been doing well with eating healthy, cutting out sugar and a lot of carbs, this past 10 months or so. But the past month, since right before my daughter’s wedding and since, I just haven’t had it in me to “diet” properly. I’ve been eating junk, and lots of it, and I feel physically yucky. I feel bad because I had done so well. But I also realize that circumstances are different: I’m “recovering” from all the work and stress of preparing for my daughter’s wedding; my kids are now out of school for the summer and my “alone time” is a lot less; I’m adjusting to the change of our family dynamics, and I’m trying to “play catch-up” for some work and things that got put on hold with all I did for the wedding (because I am not just an awesome mom but very capable in planning things and organizing, and the wedding was awesome too). In short, it takes a lot of work for ME to eat well. And even though I feel yucky physically and would really like to feel better, I have to have the emotional and mental energy to focus on taking care of myself, truly properly. Others might say (and heaven knows plenty of “professionals” and bloggers say) “just do it.” Just stop eating sweets. Just stop emotional eating. Right now, for me, it’s akin to saying, “Just stop smoking. It’s so easy.” I’ve never smoked, but I have certainly heard how hard it is to stop.

I’m trying to allow myself to feel, to validate my own feelings. I’m talking to a few trusted friends who are kind enough to listen and validate as well. I’m also trying to allow myself not to take it too hard that I’ve gained a few pounds and am having a hard time with the junk food. Because I also know that I’ll be fine soon enough and will get back to where I should be. If I’m not there at this very moment, today, it’s OK. I will be soon. And that’ll be OK.

In short, I’m giving myself permission to feel, to not be “my best.” And I strive to do that for others. When they talk about feelings or issues they’re struggling with, I know that even if they sound “easy” for me, they’re not easy for them. I nod, I listen, I hug. I say, to them and to myself, “That is hard. I’m sorry you’re going through that. I love you and care about you.” And it’s true, and that’s really all it takes.

Perfectly imperfect mothering

So it’s another Mother’s Day. This year is my 19th as a mom myself, so I’ve become accustomed to my children (and husband) scurrying around trying to figure out how to show me particular love and gratitude on my official day. But this year is the first for me to contemplate the reality of my own daughters becoming mothers: my oldest is getting married in two weeks, and somewhere down the line she will become a mother herself.

I could write a book (well, I have, actually, years ago when my oldest was little and I was just discovering truths more experienced women already knew) about mothering, but today I’ll try to share just a few words about my feelings this day, this week, this month.

I’ve realized even more than before that two opposite truths can coexist perfectly fine, and usually do: I can feel I’m doing an amazing job as a mom and I can feel I’m doing a terrible job as a mom. And while those generally go back and forth, sometimes I can feel both at once. And they’re kind of both true. I’m a person of faith, a Christian, and I believe I’m the daughter of a Heavenly Father and that I have a Savior, Jesus, who taught vital truths for me to follow, set an example, and most importantly suffered and died for my sins and weaknesses and general mortal-ness. So I can feel in that very weak mortal-ness that I’m not doing nearly as well as I’d like to be, being like that perfect example that was set. But if I just try to remember that I’m not expected to be doing great, not expected to be perfect, that the whole point of Jesus atoning was to make up for my huge insufficiencies, I feel a lot better.

This applies so well to the daunting job of mothering. I like to speak to reality, to the challenging, painful, imperfect realities that we all experience day to day. And it’s true that I can lose my temper, that I can get annoyed with my kids, that I can say things I wish I hadn’t and not say or do things I wish I had but just couldn’t summon up the energy to do. I think everyone today is painfully aware of our realities, of the ways we fall short, of the ways we don’t at all seem to fit in the glowy, pink, Hallmark Mother’s Day Mother role. So I’ve seen a lot of friends or others speak to this reality, this feeling that we just simply don’t measure up. And that’s true. We don’t. We’re not perfect, we’re not all the same, in the same Mother mold. Our own mothers weren’t, and we aren’t as mothers ourselves.

But it’s also absolutely true that we were born to be mothers. God created us to be mothers, and He knew we wouldn’t be perfect as people all-around or as mothers, specifically. And He was OK with that. He allowed us to have this experience of motherhood in part so we could become better through the crucible that it is, and that all of us interesting, different, unique souls could rub up against each other in all our roughness and smooth out our edges together. Most importantly, our Heavenly Father didn’t send us to Earth to do smoothing without any help. I firmly believe He is heavily involved in our lives and that if we turn to Him and the Savior, we will be lifted and all the stupid things we do will be made better somehow.

So this Mother’s Day, I honor my mom not because she was perfect or I grew up in the perfect home, but because she was herself and did a great job of it. Her mothering was what I needed. I feel good about my strengths and how I’ve put those to good use day in and day out with my four daughters. When it comes to my many weaknesses, I will try a little harder not just to be better but, even more than that, to remember that I am not expected to be perfect, that God will fill in the holes. I will try to remind my daughters above all that God is aware of them and that they have a Savior, and He will be there with them in everything they do, no matter how imperfectly they do it. I think I’ve done a good job teaching my oldest to turn to her Heavenly Father for help, day in and day out, especially for the times when maybe I wasn’t the best of help as her mom. So today, I feel confident that my daughter, with all her amazing strengths and, yes, her not-strengths, will be a great mom. She’ll struggle, she’ll flail around a bit, but she will be awesome. She’ll have moments of that high when mothering seems truly like a gift from God and her little ones almost like angels, and she’ll have days that are blurry from lack of sleep and dark from feelings of inadequacy.

In short, she’ll feel like mothers everywhere. And I thank God for that.

To my pregnant and postpartum friends: take that weight off your shoulders, not your belly

I am about to turn 45 and haven’t been pregnant for almost 13 years now, but I have a number of wonderful younger friends who are still firmly in their childbearing years. I am writing today to them.

Dearest friends, I see your adorable posts on social media and am thrilled with all the sweet experiences you are having now, just as I remember enjoying a decade and a half ago. I can’t help but “like” your comments and pictures of growing bellies and ultrasounds and new babies. What an amazing period of life you are in — and difficult and challenging and exhausting and … the list goes on. The joy is equaled by the fatigue and all the other challenges that can come from pregnancy and taking care of an infant.

But I’m going to say this with all the kindness and tenderness I can show in the mere printed word (hopefully you know me well enough “in real life” to be able to hear me saying this): please stop worrying about your weight.

I have seen your posts over the course of months and been concerned for you when I’ve noted multiple comments about how much weight you’ve gained (in exact number of pounds) and how you were already planning during your pregnancy to lose it post-delivery (yes, I see your Pinterest boards too). I’ve worried a little for you when you talked about your weight a mere two weeks after giving birth.

cathy pregnant
This was me just before giving birth to my third child. Do celebrities ever look like they’ve swallowed a torpedo?

Believe me, I was there. Three times. I gained the exact same number of pounds each pregnancy: 38. And each was different. I started out about 25 pounds overweight with my first and ate pizza almost nonstop and didn’t exercise at all. With my second, I started out maybe 10 pounds overweight and exercised for about the first six months and ate a little better. With the third, I was at just about an “ideal” weight starting out and exercised up until a couple of days before delivery (I looked pretty ungainly, I’m sure, with my huge belly on that elliptical machine, but it felt good). I still gained the same amount of weight each time. And every single time postpartum, I breast-fed my girls and counted calories (keeping them to a reasonable amount for nursing) and exercised after six weeks had passed after delivery. On the last one, I got back down to a really good weight for me six months after my baby was born.

I went into all that detail to show you that, yes, I’ve been there. And for me, losing weight postpartum was work. I felt the pressure. Yes, I hated seeing the pounds pile on during each month of pregnancy, especially after working so hard to take them off during previous ones. I feel bad saying that now because I wish I hadn’t been worrying about something so superficial as how I looked while I was growing the amazing human beings I’m now proud to call my daughters. But the (sad) truth is, I would feel the same way again even now if I were to be pregnant again. I struggle more now with my weight since I’m older; it’s even harder now! And I struggle with the struggle. I want to be healthy but I don’t want to allow myself to be caught up in our society’s “religion” of thinness, of image, of appearance. I am working to be kinder to myself and try to separate myself from the bombardment by media and culture that tells me how I look is a huge component of my worth.

Because this is the truth, one that goes completely opposite to the messages we see and hear all the time in our media-saturated culture: My worth is not tied in any way to how I look, whether it’s how much my body weighs or how many wrinkles I have (or that aging neck that’s manifesting itself) or how gray my hair is.

And that’s true for all of you. Even though society is pretty much shouting from the rooftops (and our ever-present computers and handheld devices) that we’re supposed to be thin, that it is possible (because, hey, look at the celebrities!) during pregnancy, except for a cute “bump,” and then entirely thin (no more bump) immediately after giving birth, and thin all the rest of our lives, that is just A LIE. Pregnancy changes us. Life changes us. And we’re all different anyway. We all have different body shapes and shouldn’t be worrying about trying to fit our square or triangular or hexagonal pegs into round holes. People come in all different shapes and sizes and colors. Make the best of your own shape, size and color. Take good care of your body. Value it for what it can do for you, for the part it plays in who you are as a whole. Treat it kindly and with respect. But don’t spend a disproportionate amount of your time and energy trying to make it what society says it should be. It’s only going to make you more exhausted than you already are, and when you are pregnant or taking care of a baby, you have NO ENERGY TO SPARE. You know this.

So, my dear friends, stop posting about your weight and size. Stop worrying about it. Take gentle loving care of your body and your psyche. Delete your Pinterest “Fitspiration” board. Those things are just plain dangerous. And please keep posting those baby pictures. I can’t get too many of those.

No cool holiday traditions? You can still be on the nice-parent list

My kind of PinSeems every time “the holidays” roll around, someone invariably asks me in some setting what kind of traditions we have as a family, their eyes lit up with high expectation. I hate to disappoint, but honestly, I feel like I got nothin’. I’ve heard some great stories from other people and on social media, to be sure, but all I can mumble is something about how we “open presents, eat a family dinner, talk to family members…”. As much as I’d like to, I haven’t gotten around to taking the kids to serve at a soup kitchen, for example, or doing something strikingly meaningful and religiously significant on Christmas Eve. I do believe that Christmas exists for us to remember the Savior of the World, I really do, and I try to follow Christ every day. But do I do a lot with my kids to observe that at the time of his “birthday”? Uh … not really.

Add to that people’s Facebook posts or tweets or Pins on what they do with the Elf on the Shelf every day of December (luckily, that didn’t get popular until my kids were well into growing up, so… phew!), and I just shrug and feel a little boring or deficient.

But here’s the thing: I don’t think my kids are suffering from lack of “notable” story-worthy traditions. They’re well-adjusted, happy, fun, giving, and all-round great girls. They have good memories, as do I from Christmases past. I guess my tradition as a parent is just to do the same things my parents did when I was a kid: shop and wrap presents, fill stockings, bake and cook. And hope not to be woken up way too early December 25th. I remember presents I received, time spent with my parents and grandparents and aunt and uncle and two cousins and two siblings, the music we would listen to, the cookies and pies Grandma made, my mom’s homemade noodles simmered in rich turkey broth to perfection. And my girls will remember pretty much the same things: I make the same meal, the same pies, the same cookies and noodles. And miraculously, my daughters don’t wake up at 4 a.m. (as I remember doing one year, generously keeping to my room until about 6 a.m. before disturbing my sleeping parents) or even 6 a.m.

So life is good. We may not have many cool traditions; we listen to music, hang lights, decorate the tree, put out presents, unwrap them gleefully, stuff ourselves at dinner, even read the Christmas story from the Gospel of Luke. I do absolutely nothing Pin-able. Who cares? Not my girls. And in 20 years or so, they’ll be doing the same boring things I’m doing right now and smiling nostalgically about the boring days of yesteryear. I’m cool with that.

It’s high time to stop objectifying women and girls

What’s it going to take for our society to just STOP seeing women, and even girls, solely as sex objects?

This past couple of weeks, one woman’s blog post asking Target to stop the miniaturization (i.e. sexy-fication) of young girls’ clothing went viral. Rightly so. I have four daughters, ages 18 down to 7, and I have long chafed over the fact that retailers simply make girls’ clothes shorter, tighter, and smaller than boys’ clothes.

(Unfortunately, the one place this doesn’t seem to apply is in the waist and hips, because it’s dang hard to find a good variety of slim pants sizes for my slim girls. JCPenney makes them; Gap and Old Navy make some slim sizes; online retailer Lands’ End makes them. But this being a slightly-related but not completely-related topic, I’ll just keep it to this: can’t we have more sizing options? Yes, I know that, one, people — including kids — come in all shapes and sizes, and two, there are more and more heavy kids in what’s becoming an obesity epidemic, thus necessitating the plus sizes in kids’ clothes, but there still are some children out there who eat fairly healthy and are naturally slim. Argh.)

My oldest, in Bermuda shorts.

Anyway, back to the topic: Just because teen girls seemingly prefer short-shorts instead of Bermudas doesn’t mean mothers want to buy Daisy Dukes for their toddlers and elementary-school-age kids.

This goes as well for all the junior-department dresses that are about 16 inches long, particularly formals, that are strapless and end mid-thigh. Pair these with the also-trendy stilettos or huge platforms, and we have the stereotypical image that’s traditionally been reserved for prostitutes.

And look at what a really gorgeous and fun but not-skimpy dress we found for prom.
And look at what a really gorgeous and fun but not-skimpy dress we found for prom.

Mind you, I do like style, particularly dresses. I adore dresses! They’re so fun and girly and there are just SO many styles and interesting looks. I love to shop for myself; I love picking up new frocks for my girls (on sale, naturally; the better the bargain at a nice retailer, the bigger the smile on my face). But there is no reason for such a high proportion of dresses to skimp so much on fabric. And taking the sexy styles of teens (which are too sexy for girls who haven’t even reached adulthood yet) and adapting them into preteen styles is just NOT COOL.

More of us parents and shoppers should be ACTIVELY doing more to contact retailers and demand change. So kudos to this blogger. See? One person asking for change can make a difference.

Then there are the constant stream of images in the media, whether it’s music videos or movies and TV shows (to which our girls are looking for inspiration or, at the very least, simply can’t NOT see in their digital lives). The latest, apparently, is a horrific video by Maroon 5, “Animals,” featuring Adam Levine as a butcher who stalks a female customer. Oh, yeah. Let’s glorify the “fantasy” of a male stalker — a butcher surrounded by bloody carcasses, no less — with an “animal” lust that can’t be controlled.

What continues to elude me is why women who are participants in these blatant displays of demeaning women are willing to sign on. The Maroon 5 video features Levine’s new wife, Behati Prinsloo. No doubt the honeymoon phase hasn’t worn off yet. Otherwise one would hope she would be the first to say, “Look, Adam, honey, I don’t think that’s a great idea. Let’s try something else, shall we?”

Then there are Jennifer Lopez and Iggy Azalea celebrating their barely-clad backsides in “Booty.” (Let me note that I have not watched these videos, just seen a few screenshots. I do NOT care to put any more images in my head of these things.) They are the stars of their own shows; J.Lo, with her clout, arguably does or could control her image and what kind of music she sings and videos she shoots, so I hold her more responsible. I believe the typical argument goes like this: “I’m a strong, empowered woman, and I’m taking control of my own sexuality and am CHOOSING to show my sexual side.”

My only response to this is this: Baloney.

You know that you’ll get lots of attention and more money by using your sexual side to sell your “brand.”

Think what these empowered women could do if they really put their money where their mouths are and CHOSE to send different messages, messages about how richly talented and diverse and interesting women and girls all are, starting with themselves. And think what we as consumers could do if we sent a message the other direction to these celebrities and the media who promote them: What if we truly did not buy their products? What if millions of us rose up in protest and sent emails and letters, showing that we really don’t want what they’re foisting on us?

In an age when many of us really are trying to teach our girls something better, to rise above worries about trivial matters of our appearances, why are the music industry, the film and TV industries, working so hard against us? (Rhetorical question, folks.)

I heartily agree with this sentiment expressed by a parenting researcher and author in The Daily Telegraph: “I am sick of trying to teach my daughters how much they have to offer the world, only to have everything I say undermined by the sleazy, unhealthy messages that someone with no respect for womanhood promotes to the mass market to make some more money. The wellbeing of our wives, sisters, and daughters is worth more than that. It’s not OK.”

Today we recognize the amazing determination of one teen girl in pushing for education for girls in her native Pakistan. Malala Yousafzai was awarded the Nobel Peace Prize: one of the finest achievements anyone could aspire to, and she’s only 17. We aren’t all in awe of her for her booty, her figure, her beauty, or her style; far from it — she covers her head in public with colorful scarves. She bears scars from being shot in the head for campaigning for girls’ right to education. No, everyone is impressed with her convictions and bravery to do the right thing, despite almost being killed.

That’s what matters. That’s what we want to encourage our girls to embrace about themselves: their strength, their bravery, their determination to find the best in themselves and make it better and share it with others, conviction to make the world a better place. They’re all different sizes, different colors, different backgrounds. But they all have so much to give! I speak from experience because I have amazing girls.

It is high time we ALL spoke up for the amazing girls and women of this world and helped them reject being reduced to mere one-dimensional sex objects.